Opinions on MRI Please!!!!

[Valerie824]

I would like opinions on my MRI before I see neurologist Wednesday. I have EDS type 3. Severe neck pain, muscle weakness, numbness, heaviness in my arms & legs, neck feels too weak to hold my head up, dizziness,double vision/blurred vision, ringing in ears, hearing loss in left ear on occasion(comes back), headache which gets worse when I strain like coughing or going to the bathroom(especially headache in base of my skull) Trouble with fine motor skills in hand (it feels almost stiff..writing is illegible, hard to button my daughter clothes, or tie anything). Diagnosed with Aspergers. Had problems my whole life but since blood work was normal they kept telling my mom I was fine. Fatigue (I barely graduated HS bc I missed over 40 days of school due to not feeling well, nausea, and crippling fatigue) But principal let my absences slide. Learning disabilities..I have become extremely dyslexic, confusion, depression.. Memory loss BIG time. There is more... hard to type with my neuro issues. but this is a synopsis.

Dx "officially" throughout life:

EDS Hypermobility type 3
POTS (Postural Orthstatic Tachycardia)
Myelopathy/abnormal reflexes/positive babinski
Lyme Disease (one band away from "CDC positive" but "Igenix positive" and clinical dx by LLMD says I have lots of irreversible damage to my joints and "lyme induced dementia"
High functioning Autism (Aspergers)
ADD
Anxiety
Positive ANA test with High MCTD antibodies
Reynauds (dx'ed at 15 yrs old)
Mitral Valve Prolapse-MVP(dx'ed at 15 yrs old)
Chronic fatigue/Fibromyalgia
Tension headaches/migraine headaches

[selmaS]

  Hi do u have a copy of the report for this MRI?
If so, u may want to contact a Chiari specialist and see if ne of ur symptoms are related to nething seen on this MRI.

EDS can also cause many of the same symptoms as Chiari and many of the ones u mentioned....and they can tell by a MRI and a clinical exam.

Posted  below are links to the Chiari forum and our EDS group here on MedHelp....
  


  

   http://www.medhelp.org/forums/show/257?camp=msc  Chiari forum

  http://www.medhelp.org/forums/show/417?camp=msc  EDS Group

[Valerie824]

Thank you for your response! So if I showed this shot of MRI to neurologist would he say its not able to be used?

[Dr. Kokil Mathur]

Hi!
I am sorry to hear about your medical problems. It would not be possible to comment on this single film you have uploaded. However, if you have EDS type III, then some of your symptoms could be explained by this rare disorder. For the current autism-Asperger-ADD spectrum, you need a current neuro-psychological evaluation and therapy as per the current assessment. Please discuss with your doctor. Take care!

The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.