18 yr old female, 115 lbs with POTS & Autonomic Neuropathy. Also, mild mitral valve regurgitation, ADHD, mild spina biffida, and flexibility of EDS but not other symptoms of EDS. No drugs, alcohol, or sexual activity. College student and dancer. Extremely physically active, mainly with dance.
Currently on Mestinon which has almost stopped the vision blackouts (that were 15 -20 x's day) and Robinul for the constant nausea. All other symptoms still remain: fatigue, shooting pains, some loss of sensation on right side, stomach issues, reflux, tachycardia, bradycardia, random low-grade fevers, dizziness, headache, heat intolerance, feeling like low sugar events
Since the end of August, she has had a urinary tract infection, then a yeast infection, then a severe respiratory infection, and then swollen glands and a throat issue. Is this something (so many infections) that is common in patients with POTS and Autonomic Neuropathy? She still tries to have a very active lifestyle (college, dancing) and I am wondering if that runs her body down making her susceptible to illness.
She has had (almost) every test known to man and we do not know the cause of the POTS & AN. MS & Lupus & Auto Immune have been ruled out due to testing and Lyme was tested (Western Blot) several times and ruled out. Tumors (Pheochromatoma, Mastocytosis, etc) also ruled out. MRI's fine except for large pituitary which has not changed over a 2 yr period so was ruled out as an issue.
Does anyone else have frequent infections with POTS & Autonomic Neuropathy?