FYI: I am currently a 22 year old male, but from the age of 18 to about 20, I had an extremely painfull condition/situation that had me in and out to the E.R. for weeks. When I eventually got around to seeing any specialists, the "diagnosis" that kept getting tossed around was "Dystonia" and more in depth was "Paroxsymal Kinesgetic Dystonia". This "issue" only seemed to have affected my lower back and right side of my body, bascially working like Dystonia and permanently tensing those areas for about 14 or so hrs and putting me in the absolute worse pain of life.
My day would start out normal as any but would slowly progress and towards the later evening of that day I would have a full flegged "attack" or "flare up" and be unable to move by lower back or right leg the way I wanted. Given that the pain was completely un-bareable I was prescribed meds such Percocet, Diladud, Valium, Lyrica, Nuerotin, Mobic etc. These "flare ups" happened every day for quite some time (about a year) then they began to become more spaced out (every two to three days) then they became isolated and eventually stopped. I was seen at the Duke University Medical Center several times and they had quite a "team" of doctors specializing in nuerology, muscles, etc. working on my case. I have had MRIs, CTs, Xrays, EKGs, EHGs, etc and Duke could not come up with a conclusive diagnosis they were happy with, or seem to give me a "treatment plan". I eventually just stopped seeing any doctors and learned to live with it, and now as I have already stated it seems to be gone. My questions are is it possible that my "issue" is not gone, but only "dorment" and may rise again? Can Dystonia or something along the lines of my situation be hereditary? Maybe you or someone can shed some light on this situation or point me in the right direction. Any help at all is greatly appreciated, thanks for your time.