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Partial Seizures
Hi,
My son is 7 years old and we noticed 'turning of head' and 'blinking of eyes' a couple of years ago, mostly when he was watching T.V. and talking to others. MRI shows no disorder in the head/brain. EEG shows some kind of mild seizures. Doctor said it might be mild seizures that is causing the 'tics'(involuntary movement of head) and he prescribed Depakote. My son has been on 'Depakote' for more than a year. He is much better as long as he takes Depakote(250mg. in moring and 375mg. at night). I told the doctor that my son is much better now and wanted to stop the medication. When we reduced the Depakote slowly
(250mg.morning/250mg.night for a week,
250mg.morning/125mg.night for next week, 125mg.morning/125mg.night, etc)
I did not notice any differnce till I gave him 125mg. in the moring and 125mg. at night. But when stopped completely, my son started turning his head again and blinking his eyes. Doctor said it confirms my son having mild seizures. Now, my son is taking Depakote 250mg.in the morning and 375mg. at night. My question is how long my son has to take Depakote? Is there any alternate medicine for this? Is there any permanent cure for this? He has no other problems other than turning his head and blinking his eyes.
I appreciate your response.
Thanks.
My son is 7 years old and we noticed 'turning of head' and 'blinking of eyes' a couple of years ago, mostly when he was watching T.V. and talking to others. MRI shows no disorder in the head/brain. EEG shows some kind of mild seizures. Doctor said it might be mild seizures that is causing the 'tics'(involuntary movement of head) and he prescribed Depakote. My son has been on 'Depakote' for more than a year. He is much better as long as he takes Depakote(250mg. in moring and 375mg. at night). I told the doctor that my son is much better now and wanted to stop the medication. When we reduced the Depakote slowly
(250mg.morning/250mg.night for a week,
250mg.morning/125mg.night for next week, 125mg.morning/125mg.night, etc)
I did not notice any differnce till I gave him 125mg. in the moring and 125mg. at night. But when stopped completely, my son started turning his head again and blinking his eyes. Doctor said it confirms my son having mild seizures. Now, my son is taking Depakote 250mg.in the morning and 375mg. at night. My question is how long my son has to take Depakote? Is there any alternate medicine for this? Is there any permanent cure for this? He has no other problems other than turning his head and blinking his eyes.
I appreciate your response.
Thanks.
A related discussion, Partial Seizures was started.
I have had same symptons as you only more severe. I have had all the medical tests avail mri's blood spinal eeg's. No results. Here is what I reccomend to you. Get a doc to prescribe a massive dose of accyclovyr for 1 week. Although the big boys can not find things they are there. There is a virus out there called Herpes-6 99.9% of the docs never heard of it. There are many other herpetic viruses also that can not be detected. The accyclovyr for me is a miracle drug. Here is another condition that viruses cause and all there symptons. CFIDS here is a web site check it out. Do not expect Doctors to help you. They have very little knowledge in this area. Trial and error is the only way.http://www.godot.connectfree.co.uk/gold.html
Any questions email me at ***@****
Any questions email me at ***@****
Kris , Maybe an Neorologist isn"t your priority .
Sorry i never seen your post i guess that is the reason i cant post EVER!
Seems like it will be almost impossible getting a serious problem answered and it should be answered by a neuro doc.
I mean 2 questions a day thats all i see getting posted?
Wow ok well i guess i will not get this answered here i will try looking to see if i can find another site,someone told me about a site called Dr Stoll. at http://www.bcn.net/~stoll/
I guess i will try there thanks again!
Happy Holidays.b
Seems like it will be almost impossible getting a serious problem answered and it should be answered by a neuro doc.
I mean 2 questions a day thats all i see getting posted?
Wow ok well i guess i will not get this answered here i will try looking to see if i can find another site,someone told me about a site called Dr Stoll. at http://www.bcn.net/~stoll/
I guess i will try there thanks again!
Happy Holidays.b
This is for Chris,
Once again, Chris, you have posted a question in the "post a reply section." If you would review Amy's and my advice to you in an earlier post, "persistent soreness in shoulders...," you will see how and when are the best time to post a question. Maybe your feeling is that if you post in the "reply" section long enough and often enough, the physician will respond to your question. Unfortunately, if they do that for you, they would have to do that for everyone and there is not enough funding to allow for that. I encourage you to keep trying to post your question by following directions and the advice given you previously--hopefully you will have an answer soon. Best of luck to you.
Once again, Chris, you have posted a question in the "post a reply section." If you would review Amy's and my advice to you in an earlier post, "persistent soreness in shoulders...," you will see how and when are the best time to post a question. Maybe your feeling is that if you post in the "reply" section long enough and often enough, the physician will respond to your question. Unfortunately, if they do that for you, they would have to do that for everyone and there is not enough funding to allow for that. I encourage you to keep trying to post your question by following directions and the advice given you previously--hopefully you will have an answer soon. Best of luck to you.
Dear Kavi:
I am sorry to hear about your son. There is a big difference between tics and seizures. Tics are behaviors that are controlled by the brain. We are not certain what the inducers of tics are, but most think that somewhere in the basal ganglia there is a developmental disorder in the control of movment and vocalization. Tics usually do not respond to seizure medications. They will come and go, generally increase in frequency in the early teen years and in some cases cease later in the teenage or early twenties. They also change over time. Seizures are controlled by the brain's cortex. They are usually repetitive behaviors that have an EEG correlation. When they arise from a focal area of the brain they are called partial epileptic seizures. I am not sure what your doctor meant by "mild" seizures. Depending on the seizure type, some patients will "out grow" their seizures, some will not. Without knowing more information, I can't tell you much more about the particulars of your son. There are other medications available, but usually the best ones are the ones that work for a particular patient. Depakote seems to work for your son. If his seizures are coming from a very localized area of the brain, and his seizures are intractable, then epilepsy surgery is a possibility. But, if his seizures are controlled by medications, then medications are the best route. Sorry, I can't help you more.
Sincerely,
CCF Neuro MD
I am sorry to hear about your son. There is a big difference between tics and seizures. Tics are behaviors that are controlled by the brain. We are not certain what the inducers of tics are, but most think that somewhere in the basal ganglia there is a developmental disorder in the control of movment and vocalization. Tics usually do not respond to seizure medications. They will come and go, generally increase in frequency in the early teen years and in some cases cease later in the teenage or early twenties. They also change over time. Seizures are controlled by the brain's cortex. They are usually repetitive behaviors that have an EEG correlation. When they arise from a focal area of the brain they are called partial epileptic seizures. I am not sure what your doctor meant by "mild" seizures. Depending on the seizure type, some patients will "out grow" their seizures, some will not. Without knowing more information, I can't tell you much more about the particulars of your son. There are other medications available, but usually the best ones are the ones that work for a particular patient. Depakote seems to work for your son. If his seizures are coming from a very localized area of the brain, and his seizures are intractable, then epilepsy surgery is a possibility. But, if his seizures are controlled by medications, then medications are the best route. Sorry, I can't help you more.
Sincerely,
CCF Neuro MD
Hi-it sounds as though you have gotten good advice from the responding neuro above. Most neurologists will consider weaning anti-seizure meds after 1-3 years seizure free, if the MRI and EEG are normal.
The chance of being weaned off meds goes down for everything that is abnormal. My dau. is on depakote and lamictal for partial sz, which is what it sounds like your son has. Partial seizures may be harder to control than other kinds of sz that kids get, but every case is different.
I would recommend finding a dr who specializes in Epilepsy, as they generally have the most up to date treatment advice.
Good luck.
The chance of being weaned off meds goes down for everything that is abnormal. My dau. is on depakote and lamictal for partial sz, which is what it sounds like your son has. Partial seizures may be harder to control than other kinds of sz that kids get, but every case is different.
I would recommend finding a dr who specializes in Epilepsy, as they generally have the most up to date treatment advice.
Good luck.
Hello i was wondering if you can help me iam basically out of energy trying and getting knowhere.
Maybe my question is seizure related thats why i posted here.
27 year old american male symptoms onset october 98 i went to the doc for feeling really fatigue,weak,lightheaded,confused.
The doc did cbc,thryoid,liver tests,ebv tests,she called me and said i was at one time diagnosed with the epstine barr virus and i would be fine the other problem was she said iam hypothryoidism and need a small dosage of synthroid which iam on .88mcg all the other tests were within range she said so i gradually got a little better well 6 months went by and iam back to the dumps i go to the doc again she says we will take blood so she did, said eveything looked the same and to stay on the thryoid.She put me on lotensin for my blood pressure the bottom number she said has always been a little high.
Well iam here back at my stage again and this time it wont go away i have hot tingly prickly electric shock flashes that usually effect my back and arms alot sometimes my legs.
My legs are always feeling washy and shakey and nervous my feet always seem to feel cold.
I have ibs as for i always have loose bowels and sometimes alot of bile?
When i stand up i feel spacey and like it is just so hard and i feel heavy?
The worst thing is i have been getting alot of nervousness in my hands,head,feet and i will notice when i stand i stand to one side and my rt leg seems to shake alot my rt toes i notice like to curl and my heel likes to move up and down could this be something like MS?
My current symptoms for the last 2 months to current are:
Lightheaded,Dizzyness,Nervousness especially when doing something,Hot sweat pin/needle electricity tingle prickle flashes down my arms and chest and neck,I get sudden burst twitches that jerk me real fast(kinda like when a person wakes up out of shock),Ibs,Fatigue,No energy,My eyes water and my left eyelid twitch's sometimes,Ears crackle,And to stare at something for a minute straight my eyes start to burn and they water it makes me feel really weird and like really spacey? Should a person feel like they dont even want to get off the couch and when they sit up to feel like iam gonna fall over and die?I feel a rush/lightheaded sensation in my head when i stand up or tilt my head back.
My neck seems to bother me too?
Could i be having seizures?
My current tests have been done:
Cbc,Ebv again and he said it is non-conclusive,Colesterol tests,Thryoid which is still a little elevated.
In oct 98 i had a mri/no contrast as in they did not use any die which came back good with no signs of any abnormalities but did say there was minimal mucusal build up?I went back to the neuro again recently due to same symptoms and he did a hands on exam and said he thought it was inner beningn vertigo of the ear?
And the chance of anything coming up in the brain such as brain tumors,etc within 2 yrs to date of prior mri would be a rare occurence?(Is this answer highly true and is it possible that the mri without contrast dye missed something compared to a mri with contrast dye?)
So i went to ENT and he did a ecog and a abr and he found nothing?(But he is gonna do a mri with contrast/die at my ears to look at the inner ears?(does this test tell alot and would'nt make sense if they just do the whole brain mri with dye and be done with head problems period it would make me feel better!
Iam back at square one here and feel like i have been hit by a mac truck i notice too alot my lower back will tend to bother me off and on as well as my rt side of my back?
I went to the emergency room about a month ago and they did a catscan/no contrast said it looked good said he was looking for masses,lesions,etc.
Nobody has an answer at all there has to be more testes to do dont you think?
My doc just says you blood tells us alot and you dont have cancer or anything well thats a relief but iam tellin ya something is wrong and i dont want it to be too late?
Can you please give me some direction or some other testes i can reccomend to my pcp?
All i get is iam sorry we just dont know whats wrong but he says it is not life threating so dont worry yourself well i wish i could pass this onto him i bet he would change his frame of thought!
Oh yeah i just went to the cardioligists and they made me wear a holter for 24 hrs just to see if anything changes with my heart since my blood pressure has always been a little high which iam on 10mg lotensin for but it is ok as for my doc said he recieved the answer and there was nothing wrong.
Thanks You And Merry Xmas
Chris in Seattle,Wa
My biggest fear is dying of a brain tumor or something they have not found?
Please shed me some hope?
Maybe my question is seizure related thats why i posted here.
27 year old american male symptoms onset october 98 i went to the doc for feeling really fatigue,weak,lightheaded,confused.
The doc did cbc,thryoid,liver tests,ebv tests,she called me and said i was at one time diagnosed with the epstine barr virus and i would be fine the other problem was she said iam hypothryoidism and need a small dosage of synthroid which iam on .88mcg all the other tests were within range she said so i gradually got a little better well 6 months went by and iam back to the dumps i go to the doc again she says we will take blood so she did, said eveything looked the same and to stay on the thryoid.She put me on lotensin for my blood pressure the bottom number she said has always been a little high.
Well iam here back at my stage again and this time it wont go away i have hot tingly prickly electric shock flashes that usually effect my back and arms alot sometimes my legs.
My legs are always feeling washy and shakey and nervous my feet always seem to feel cold.
I have ibs as for i always have loose bowels and sometimes alot of bile?
When i stand up i feel spacey and like it is just so hard and i feel heavy?
The worst thing is i have been getting alot of nervousness in my hands,head,feet and i will notice when i stand i stand to one side and my rt leg seems to shake alot my rt toes i notice like to curl and my heel likes to move up and down could this be something like MS?
My current symptoms for the last 2 months to current are:
Lightheaded,Dizzyness,Nervousness especially when doing something,Hot sweat pin/needle electricity tingle prickle flashes down my arms and chest and neck,I get sudden burst twitches that jerk me real fast(kinda like when a person wakes up out of shock),Ibs,Fatigue,No energy,My eyes water and my left eyelid twitch's sometimes,Ears crackle,And to stare at something for a minute straight my eyes start to burn and they water it makes me feel really weird and like really spacey? Should a person feel like they dont even want to get off the couch and when they sit up to feel like iam gonna fall over and die?I feel a rush/lightheaded sensation in my head when i stand up or tilt my head back.
My neck seems to bother me too?
Could i be having seizures?
My current tests have been done:
Cbc,Ebv again and he said it is non-conclusive,Colesterol tests,Thryoid which is still a little elevated.
In oct 98 i had a mri/no contrast as in they did not use any die which came back good with no signs of any abnormalities but did say there was minimal mucusal build up?I went back to the neuro again recently due to same symptoms and he did a hands on exam and said he thought it was inner beningn vertigo of the ear?
And the chance of anything coming up in the brain such as brain tumors,etc within 2 yrs to date of prior mri would be a rare occurence?(Is this answer highly true and is it possible that the mri without contrast dye missed something compared to a mri with contrast dye?)
So i went to ENT and he did a ecog and a abr and he found nothing?(But he is gonna do a mri with contrast/die at my ears to look at the inner ears?(does this test tell alot and would'nt make sense if they just do the whole brain mri with dye and be done with head problems period it would make me feel better!
Iam back at square one here and feel like i have been hit by a mac truck i notice too alot my lower back will tend to bother me off and on as well as my rt side of my back?
I went to the emergency room about a month ago and they did a catscan/no contrast said it looked good said he was looking for masses,lesions,etc.
Nobody has an answer at all there has to be more testes to do dont you think?
My doc just says you blood tells us alot and you dont have cancer or anything well thats a relief but iam tellin ya something is wrong and i dont want it to be too late?
Can you please give me some direction or some other testes i can reccomend to my pcp?
All i get is iam sorry we just dont know whats wrong but he says it is not life threating so dont worry yourself well i wish i could pass this onto him i bet he would change his frame of thought!
Oh yeah i just went to the cardioligists and they made me wear a holter for 24 hrs just to see if anything changes with my heart since my blood pressure has always been a little high which iam on 10mg lotensin for but it is ok as for my doc said he recieved the answer and there was nothing wrong.
Thanks You And Merry Xmas
Chris in Seattle,Wa
My biggest fear is dying of a brain tumor or something they have not found?
Please shed me some hope?
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