Aa
MedHelp.org will cease operations on May 31, 2024. It has been our pleasure to join you on your health journey for the past 30 years. For more info, click here.
Aa
A
A
A
Close
Avatar universal

Pineal Cyst Causing These Symptoms?

Hi Neurology,

Since Feb 2022 I have been having some strange visual symptoms which are hard to describe;

- I cannot focus my attention on something in particular to take in fine details anymore (for example trying to focus on a single letter in this sentence), nothing is blurry but I just kind of zone out and feel as if I can't process the same as I used to. The best way to describe it would be to say that my vision used to be sharp like a laser
when I focused on something, now it feels as if my vision is more diffused like the light coming from a torch.

- I get a kind of dizzy, nauseous feeling which 100% feels visually triggered, the feeling is around my eyes but is also hard to describe.

- I cannot wear my glasses anymore as my eyes just feel strained, this happens whenever I wear them no matter the time. Strangely I do not get the same strain with my contact lenses but I still get the other symptoms mentioned above.

I originally ignored it and thought it was just stress however it went on for so long I went back to my optician and he found that my eyes have developed 1 point of astigmatism which I have never had before, I was glad he found something and when reading that astigmatism is a refraction issue I thought it made sense considering my symptoms. I got astigmatism correction in my glasses but that did not resolve the symptoms and 3 months later I went back and he found 1 more point of astigmatism in each eye (he said it was slightly unusual to develop another point of astigmatism in a short space of time) but equally said it's nothing to worry about.

After getting a second set of lenses for the 2 points of astigmatism and still having the same symptoms I went to my GP and asked for an MRI to rule out anything sinister, I got a brain MRI which came back clear apart from a 7mm pineal cyst which was repeated with a contract injection and did not enhance. I then read that pineal cysts can cause visual disruption, vertigo etc I went to see a neuro-ophthalmologist who has seen many people with Pineal problems and was sure that I don't have a pineal problem (don't show signs of Parinaud's Syndrome) etc and referred me to an orthoptic for a binocular vision assessment and eye movement / convergence tests which he did not find any issues.

It has been 6 months since and my symptoms have not got better and I still can't even wear my glasses without immediate strain, I struggle to watch tv and comfortably drive as well as working on a computer. Someone said my symptoms could be jaw / TMJ related and I went to my dentist and he found a problem with my bite, got my top 2 wisdom teeth removed and saw a TMJ specialist who wasn't convinced I have an issue which could cause these symptoms.

I am beginning to worry again that my pineal cyst may be causing these symptoms as I feel as if I have tried everything now, would all vision related pineal problems be detected by a specialist in person or is there a chance that my eyes are fine but I have some processing issues?

Is there any other tests that may be beneficial for me or any over avenues to try which could be causing these symptoms?

Is there a chance that even with astigmatism correction I have symptoms which could potentially be resolved by laser eye surgery?

Should I get a second opinion from another neuro-ophthalmologist / orthoptic?

Thanks
0 Responses
Sort by: Helpful Oldest Newest

You are reading content posted in the Neurology Community

Top Neurology Answerers
620923 tn?1452915648
Allentown, PA
5265383 tn?1669040108
ON
1756321 tn?1547095325
Queensland, Australia
1780921 tn?1499301793
Queen Creek, AZ
Learn About Top Answerers
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease