Post Concussion Syndrome

[sweetangel1121]

On Jan 3rd, I suffered a severe concussion when I fell and hit the back of my head. I developed dizziness, ringing in the ears, bad headache, unsteadiness and nausea.
Its now going on 2 months and I'm not getting any better. My Neurologist said that I have Post Concussion Syndrome.
What's the difference between concussion and PCS and when will it go away?   I can't even drive, or work and to even go to a store, I'm afraid to go without someone with me. I have walked into walls and doors and to go down steps is hard for me.

[Danmaged]

I have had several, possibly 10-12, mild to moderate concussions over my lifetime. I have PCS that seems to come at intervals on a 2-3 month basis. Is that at all normal? It is like it builds up over time and then just lays me out. The really big problem is when it really hits me hard I 'black out' to the point there is time missing from my life. It's very frustrating and scary. I am starting on cyprexa today. I have had MRI and CT scan which shows the damage to the brain and neck. I have ataxia and bppv, which probably lend itself to further injury. Do you have any further suggestions shy of wearing a helmet full-time? I have headaches, tinnitus, weight loss(from a healthy 200 to 160), night sweats, memory loss, relationship problems, anxiety, panic attacks, loss of sense of smell and irritability. I tend to think people just don't get it, because I am not a complainer. It is plain and simply taking years off my life.

Dan

[Tawny425]

My Husband is almost 3 year into Mild TBI (post concussive syndrome) Have you heard of Vestibular therapy? It is a strange concept but made a large difference in my husbands quality of life. Also he has musician earplugs that decrease noise level and help with not getting overstimulated in public. He still has a difficult time in public and barely drives too but I am grateful he is not driving when he know it would not be safe. One big thing we did is also take out all the fluorescent bulbs in our home. Times when you get overloaded take a break and drink ice cold water the brain seems to like the cold water. We are also careful to not let him get dehydrated. The biggest thing we learned is not all neurologist are specialists at TBI when we switched it made all the difference. Any other questions feel free to ask. if we don't help each other we've suffered for nothing.

[Sissy95]

I was just diagnosed with this and my brain injuries came from an abusive relationship in which I was punched in the head numerous times during a 5 year relationship and never taken to the hospital to be treated. Nobody could ever tell me all these years. why I was forgetting things, getting dizzy out of nowhere lack of concentration and slurred speech. Now 20 years later I have finally got a diagnoses. I guess without meds it doesn't get any better. And now that I am on the meds I feel spaced out. I was also diagnosed with seizures. I am just hoping somebody can help me function in a normal way. I am only 42 and have 3 kids and a husband to take care of. Just hope it doesn't get any worse :(

[Orbiti]

LENS neurofeedback has helped my concussion symptoms.  I had similar injuries to the point where I couldn't drive because the vibration hurt too much.  I am much better after 15 sessions but still need more as I don't feel "normal" yet.   I am hopeful a full recovery is possible with the lens treatments since I have improved a lot so far.

[IndyCar]

What is the "Lens" Treatment? I had a high impact auto accident and the seat belt anchor had a recall but wasn't fixed. I hit at 45 mph without any restraints nor brakes. It's a little under 5 months and I haven't had a relaxing environment yet. I think I'm worse

[healthhopefull]

I have had repetitive concussions for the last 18 months.  I banged my head while entering inside my car on my way to the gym.  I took two spinning classes back to back afterwards.  I felt weired after that, went home and slept it off till the next day.  By the third day I had all the symptoms of a concussion plus severe tremors that would last for 3 to 4 minutes, went to the emergency room, had a CT scan and it was normal.  It took me 3 months to feel better.  I resumed my spinning classes even though I had felt tired and not my usual self.  5 months later, while I was talking a walk at the waterfront, and while sitting down on a high backed bench the back of my head lightly hit the back of the bench.  I got all the concussion symptoms again for 5 weeks then I got better.  4 months later I was talking to a parking attendent without realizing that I was standing underenath the parking gate.  It came down on the top of my head, but again lightly it was not a heavy blow.  it took me 6 weeks to get better so I go grocery shopping with a friend and she accidenlty hits the left side of my head with her purse while grabbing it from the back seat of the car.  It took me another 6 weeks to get better.  I had a normal MRI onn the brain but the MRI on the neck showed three bulging discs and stinosis.   I don't know what I have, I  have seen 4 neorologists up till now and no one knows what I have.  My brain has become so sensitive now to the lightest hit.  Now I have the symptoms again because my hand touched my mouth with a little bit of force  while taking some pills.  

I live in Washington D.C. too and I am very disappointed at all the neorlogists that I have seen.  No one seems to know why I am having this severe sensitivty.  I am thinking of taking HBOT therapy.  Have you ever tried that?  IF yes, where can I get that kind of therapy.  Also have you ever tried to do SPECT scans?

Does anyone out there know why my brain is that sensitive or have a similar condition?  

[helpimcrazy]

had 15ft 4x4 wet post fall on my head from 8ft,cut head and concussion..I feel awful, constantly sick,headache,stiff painful neck,numbness in face,confused,spaced out etc terrible!! 2 weeks ago this happened, cant remember much just blackness then partner calling me and feeling blood on head and face ..went hospital but didnt stay [my fault wasnt feeling right but couldnt handle the wait}then went back 2 days later had ct was clear on day 10 but still after 2 weeks feel so ill , I know its early days but pray doesnt go on much longer the pressure in my head driving me crazy, I am a woman 50 years.