Post Viral Syndrome

[Stef1971]

I was diagnosed with post viral syndrome this February 2009.  I had pneumonia in November which turned into asthmatic bronchitis.  While I was on all the medications, I developed very odd symptoms:
tingling/numbess in hands and feet (sometimes lips and face)
burning and cold sensations throughout my muscles
my body shakes/tremors
weakness and some pain, more weakness in arms and legs - the weakness is better but in the arm that I use (my right arm it is more persistent and intense)
upset stomach
stiff fingers that don't seem to work like they used to
sleeplessness
muscle twitches
muscle soreness
I have been to my doctor so many times and she kept telling me that I was just recovering from the pnuemonia and that I was anxious and the put me on ativan.  I am anxious but it's because of all these unexplained symptoms.  I saw a rheumatologist that said I have fibromyalgia and I'm going for aquatic physical therapy for that.  I saw a neurologist who found nothing neurologically wrong with me and said it's post viral.  All my bloodwork has been normal and every doctor does not think it's anything pathological.  The weakness in my right arm and the shaking/tremors are very unsettling to me as are the stiff fingers that don't work like they used to.  The symptoms do vary from day to day and I have good days and bad days.  When will this all go away?  Are there any treatments for post viral syndrome?
Stefanie


This discussion is related to post viral neuro syndrome.

[ginak]

I am right here with you Padro! Hang on in there. I am glad that others have gotten better. I don't really know where to turn either.

[Padro46]

I am finding the Post Viral Dx after 16 months very hard to take as my problems--But cannot find out anything else.

[Stef1971]

My neuro didn't really say why she thought I still had the symptoms.  I think she ordered the MRI more for my peace of mind than anything else.  She did mention chronic fatigue but never was definite about what it was.  I think she thinks it was a prolonged post viral, she doesn't seem very concerned.  I had to push her to do the MRI and bloodwork.  She thought it could be Celiac disease, but my bloodwork was normal.  I think she thinks there is some link between the fact that I had mono as a teenager and that people that have had mono are more prone to post viral.  Also, because I have fibromyalgia, it sounds like post viral and chronic fatigue kind of go along with that.  It's so vague, I don't know if these doctors sometimes even know what is going on with us.
Ginak, I am so sorry that you are having so many symptoms.  I was talking to someone that had neurological lyme and she was on antibiotics for a whole year just to get better.  Maybe time will help.  Doxy is the worst, I couldn't handle it when I was on it for a week, that's good you switched meds.  You are in my thoughts.
Stefanie

[Padro46]

What did the Nuero on your last visit advise what she thought was the cause of your issues still Post Viral??

[ginak]

Chris,

I was on the Doxy for one month and it was making me way too sick. I am now on Doryx. I still don't feel any change in my neurological symptoms at all. I have not had mris since September and I am really just at a point that I don't know what to do about any of this. I feel very down today. I know that if this is lyme, it can take a while to feel better. I have been at this for about a year now and I am losing hope. I basically started on the abx because I felt like I had nothing to lose.

Stef, I am glad that you are feeling better. I wish the same for myself and others.

[Stef1971]

I feel very fortunate that my bloodwork and MRI of the brain and spine have all come out normal.  The neuro said that everything looked normal and there was no sign of muscle damage.  I see her for a follow up, but not until June.  I still too, have symptoms, but they are getting better.   I have more good days than bad days and there are times that I can say that I actually feel like I used to.  Maybe things will get better for you Chris.  I felt like you for a good 4 1/2 months, constant tingling, burning, twitching, tremors...  I hope for you and everyone else that eventually your symptoms will subside.  It is an awful thing to have no control over your body and the sensations that it can give you.  It is so scary and frustrating.  I hope that I continue to get better and that me feeling better will give all of you hope that it can happen to you too.  I hope that all of you can have good days too.:)