Post anoxic cerebral myoclonus

[MOOSER30]

HI
I have recently been disagnosed wth Post anoxic cerebral myoclonus following a cardiac arrest (after severe asthma attack).  I am struggling to find any specialist doctors in the UK who know much abt this condition or any reference/reserach material.  Plse can you advise if you are aware of any specialists who maybe able to shed some more light on what seems to be a pretty rare condition.  I am prepared to travel wherever it takes to get some further answers / help with treatment and possible recovery.

Many thanks
JMW, UK  

[islakins]

I have also recently been diagnosed with Lance Adams Syndrome with epilepsy. I would really like to disscuss  this with other sufferers if possible.

[Tammi5252]

Do you still check this site?  I hope you have found help.  My husband has lance Adams syndrome.  He had a cardiac arrest following a seizure and was resuscitated.  Now he has action myoclonus, being treated by neurologist in Boston.  Takes depakote and has much improvement.  No more falls!  Hope you find this!