Radiologically Isolated Syndrome

[janine01]

I have been diagnosed with RIS, Had a siezure 1 year ago and had an mri with only 2 lesions. One enhanced and the wer e abutting the corpus collosum. Had LP and it was positive for O-bands. Had a few more mri's since and average now 8-9 lesions presently. No symptoms.Is this unusual to have quick progressions of lesions in such a short span? I never heard of RIS and I don't know anyone who has it.

[janine01]

I don't recall ever having a concussion. I have had several Mri's with new lesions each time.
I'm am taking copaxone. They don't consider me a seizure patient or that I would need meds for that. They also don't consider a seizure a symptom of MS. Could have fooled me. My brain truly felt like it had been electrocuted. That's when we found the first 2 lesions. I am afraid that this is going to fill my brain and either have one major seizure or the worst and long symptoms  of MS. The scary part is the unknown. Every ache or pain you think, is this it, or the start of symptoms to come. The only difference with being truly RIS is that my spinal tap was positive for O-bands. How long have you been diagnosed?

[Susanlc]

Janine,

I have been diagnosed with RIS as well.  I have had seizures before I was diagnosed.  The last time I had an MRI there were quite a few more lesions.  Went to see a specialist - he thought that I wasn't having any other symptoms that we should not do anything.  We are not sure if the seizures are from a concusion I had from a car accident.  The medication could do more harm than good.  Did you ever have a concusion?