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Re: Non-Verbal Learning Disorder/Frontal Lobe Brain Injury

Posted By CCF Neuro[P] MD, RPS on November 15, 1998 at 14:59:44:

In Reply to: Non-Verbal Learning Disorder/Frontal Lobe Brain Injury posted by Mattie...I failed to add on November 15, 1998 at 12:20:19:

: I questioned whether to add this or not as it is rather traumatic formet to discuss.
But..here goes, At 8months gestation I was beaten including receiving
several blows to my abdomen to my stomach. I began vaginal bleeding off
and on till his delivery at 39 weeks gestation.  This is another
area that was questioned as having an impact on his neurologicaldevelopment.
I also failed to add that he was diagnosed by an occuapational
therapist as being sensory defensive.  I have completed the
"Wilbargers Protocal" for brushing and joint compression on
him twice.  He continues to dislike warm foods, socks with seems,
any clothing with buttons and a very strong dislike for crowds
and busy enviroments.  I know that these also coincide with a Non-verbal
learning disorder, ADD and with OCD traits.  However, after reading
the literature on Non-verbal Learning Disorders and speaking with
his doctors and the school evaluating team, all these symptoms that
little quirks he has demonstrated since birth very strongly coincide
with a non-verbal learning disorder.  I strongly feel as well that
his quirks, anxiety disorders, auditory perception problems and his inability
to undestand fully oral directions are very significant in his learning
I am now experiencing guilt over not finding this information out sooner and maybe
his younger years leading up to his 7th grade could of been less traulmatic for him
if we had figured out why he acted the way he did earlier.
I understand fully that many non-verbal learning disorders are not
always apparent until the teen years.  I recently read an
article written by an 18 year old girl that was diagnosed with
a NVLD at age 13.  The beginning of her article starts with....
why, what, I don't understand, What do you  mean and I can't do it sentences that
described her lack of ability to understand her enviroment around
her.  Those words are my son to the letter.
Thank you so much for making me feel good...I really needed to know that
I have done what is right for my son. Also, I should add while
I agree that some of his shutting down may have been his age
there were other circumstances surrounding this than I have stated including my
having to have a serious operation which has put me on disability
for several months.  My son and I have a very tight special bond
and my being ill in the schools words "devastated him."
Again, thank you....Mattie
Dear Mattie:
I am sorry that you have had to endure so much.  Sometimes in life, we learn from what life presents to us, and you have your Ph.D. in life.  You are doing the right things by you son.  You can't change the past, only learn from it.  Try and not feel guilty for what you didn't do and feel wonderful about what you did do.  Like previously mentioned, the combination of his disorder and his age likely are responsible for his moments of "not being there" or inattentive.  Best of luck.
CCF Neuro[P] MD, RPS
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