I had a v3 neurectomy (the MD drilled a hole in my mandible to get to it). I was totally pain free for 17 days, then the pain came back worse than before. One thing I've noticed on these forums, the patients with failed procedures don't get answers to their questions. I think the docs need to realize that not all people "sue" for bad results. BUT, each of us who have a failed procedure STILL need medical attention. I know how you feel. Keep searching for the truth.
I too had a cervical RF in May 2007. I was fine for 2 days following and then on the 3rd day I experienced the worst neck pain I've ever had! I also have osteoarthritis, degenerative disk disease and bone spurs. My doctor ALSO said neuropathic pain, prescribed prednisone and sent me on my way. I desperately searched for another physician to help me with the new pain in addition to the old pain. I have been taking Lyrica for about 3 months now and it has helped with the burning and stabbing pain, but I have yet to have a pain-free moment since this all started. My new physician is encouraging though and is planning on placing a spinal stimulator in my spine to interrupt the pain signals. It won't stop the muscle spasms, but hopefully will help with the 'neurogenic/neuropathic' pain. Also, the skin on my neck has felt like it has a severe sunburn since the RF as well. Anyway, hope you find answers and a refuge for your pain too. Sincerel, JZ
i too was offerd a nerve stimulatior ,however i declined due to it not actualy fixing the problem , and of the people who i had met who had a nerve stimulator said that it didnt reduce the pain much or enought to recomend it to anyone else.
I had and once again have Left sided Head, Neck and shoulder pain/spasms starting in 1999. In 2002 or 2003 I had Rhizotomies of the left sided cervical spine and left sided occipital lobe (coming out of the spine there but innervate the left forehead) after 2 slip and falls on my back (hitting the occipital lobe (back) of my head) . Physical Therapy in Jan.1999 through Dec.2001 had helped 2 times but the third time 2001 the Physical Therapist put too much weight on while stretching my cervical spine and PT never helped in a recovery since then only helped decreasing pain/spasms from other procedures that failed. In 2002 or 2003 the first Rhizotomy with followup epidurals eventually gave me 8-9 years of relief. I went back to school and became an RN. then after working a few years It came back and second upper and lower Left sided Rhizotomies failed..Spasms are back tried other procedures at MHNI but no one knows why they failed either!!! Your probably right an incomplete root frying (severing) is the most likely possibility. I had a facet block (precursor for a Rhizotomy) in 2013 but that just stirred things up more and had to go to PT to calm back down some only, no cure there. Maybe occipital lobe rhizotomies might help or epidurals (with long acting corticosteroids) might help? One Neurologist suggested Botox. Not for me!!! I just take Zanaflex 8 mg (max dose) prophylactically every night (12;30 am) and with the spasms that break out 7-8 hours later. Most of my spasms are between 2 am to 10 am so that is why I take meds at 12:30 am. It does spare me some spasms and reduces the length and severity of the spasms. I also take Klonopin nightly to help deal with the pain/spasms but very dangerous (suicides / addictive) and Tramadols (Ultrams) 2-50 mg for severely painful ones. I am also on BP meds that cause low energy along with the muscle relaxers and klonopin but that's how I survive. I do get a day off here and there but I am on SSDI since no definitive treatment (no energy either plus fogginess) so far. Maybe the Mayo Clinic in Minnesota may have something for you? I am not optimistic. What I do may help you (prophylactic Zanaflex). I did try Flexeril with the klonopin but that doped me up longer on the days I did not need Tramadols. Zanaflex less so. Get the Zanaflex tablets not the capsules they cost less with Humana Walmart class 1 or 2 not 3 or 4(more costly). Tramadol 100 mg works for me with 1mg Klonopin and 8mg Zanaflex may have to wait an hour or two for it to kick in. Still foggy most of day with all together.
I had L2,3 and 4 rhizotomy on both sides. The left side.....no problems. When I went back to get the right side I woke up and my entire right leg was numb. I stayed in the hospital for 8 days because the right leg lust wouldn't work. I had to use a wheel chair for weeks, then crutches and finally graduated to a walking stick. I know have use of my leg but still have numbness from the knee down. I take Gabapentin 4 times a day to reduce that "shocking" or electrical spasms and I alternate between hydrocodone and tramadol.... depending on the level of pain. It's been 6 months and Ive had 4 spinal blocks to try and help with the pain but no luck.
It appears the nerve he fried are growing because im getting some feeling back. Problem is...since I had no feeling from the knee down I had no idea I tore my MCL. This has been a nightmare.
I missed 14 weeks of work because I'm a firefighter and kinda need to be healthy to do this job. Needless to say... lawsuit pending.