Small Fiber Neuropathy - Constant Migraines / Eye Pain

[FleeBag625]

I was just wondering if anyone who has been diagnosed with small fiber neuropathy has also had uncontrollable non-stop headaches. I had an EMG done in January 2011 and there was no evidence found or neuropathy I am scheduled for a skin biopsy March 3rd. I have had a de-sensation in my left hip to my foot and my right foot for months now and about a month before my neuropathy started I started getting horrible headaches with eye pain that would not go away with any type of medication and would send me sometimes crying to the emergency room.

I have been diagnosis with a non-symptomatic tarlov cyst (cyst on spinal cord) which I think might cause issues but no one will admit. I have had numerous brain MRI's and a Lumber MRI with no signs of pinched nerves or leisons. I do have Aggressive Chron's disease and I am waiting for test results for Rheumatoid Arthritis.

I am only 25 and I have a 3 yr old. I cant stand living like this. My neurologist thinks my headaches are muscle spasms over my skull and has me on muscle relaxers 3 times a day that do nothing. sometimes the pain in my legs is so bad I cant sleep. I just dont know what to do anymore

[Marie822]

What you are describing with your eves and headaches is Trigeminal Neuropathy. Look it up on the internet and you will see the connection. Good luck, I have read that this is excruciatingly painful. Marie822

[FleeBag625]

Also note I have unexplained tachycardia and have been experiencing a horrible sharp electric shock feeling from my left elbow down to my pinky and ring fingers. Which causes them to loose mobility