I broke my neck in 1987 when I was 15. Shattered c 3, 4 and 5 and bent/compressed the spinal chord and have two bubbles, or dead pockets in the chord in that area. I did this by diving into a pool and hitting the pool to the center of my skull at the top, I was quadraplegic for a few months and have had problem related most my life, but has been overall good until the last 4 years whn i turned 37 when I got acute symptoms that were seasonal and and are crippling. A lot of damage is to the nerves that deal with cold/hot and sense moisture, and am terribly sensitive to cold so that, I have to take narcotics which helps alot, and as well with my related arthritis at the neck. I have extreme allergic reactions to most modern medications and lots of foods.
I had moved to central florida, but had to move as daily I woudl get heat related migrains in summer, where aftert 2pm in summer, if in direct heat, mouth would taste irony or liek blood, and Id almost collapse daily and get acute depressed state and have to lie down. I moved back to Tennesee and the migraines have not returned.
I moved to FLroida as I had acute problems suddenly appear that I know know are directly related to changes in barometer and start it seems the day the leaves change, and end for the most in mid srping and are severe and cripplng. AFter 4 years doctors coudl not figure out the cause, the at one time thought it was pollens, but, I had no insurance and was hard to get help that was thorough, took me 1 and a half years before I finally got a mri which foudn the two pockets in my c spine on the left and right side of the central fluid core and foudn as well have a lesion in the mid thoractic spine, which I did not know about.
Startign in spring usually, and I had signs years ago but they were much less and I ignored them and went without meds for 10 years and woudl just go without sleep.
But these are the symptoms. I get nerve pain in my right foot and arm, which causes stress or confusion in my brain. [I note also that I have a regular cold hot related nerve pain that causes confusion to my brain, which the narcotics solve for the most and this is unrelated, but unmedicated I cannot go out in the cold and if in water I cannot tell temperature or tell if my body core temp decreases, until I get ot of the water, which, in such case, as I found this spring, my body core went down and in teh 30 minutes in when my body temp tried started to balance, I have the same symptoms as the ones I despcribe for the seasonal...
Starting in fall this year, exactly the day the leaves changed, and goes away with an indian summer, and has come in 2 major hits where I almost hopsitalized myself, but I learned to jsu twait it through as it goes away as suddenly as it comes with the barometric pressure going back to 30 or above, [it' can be absolutly devistating with big weather comming through], but these are the symptoms.
I get severe ear ringing. Feels like my head is filled with cotton. OFten sinuses close totally, within the span of a few seconds, [ears ring albeit from fall to spring], confusion, nose runs, sometimes nausea, loss of thoughts, hyperaesthesia,[sounds are deeply disturbing, movemnent, touchign things can be overwhelming], in acute weather patters of change, smell of rotten mucus, symptms of fever, chills, shaking, even in a warm shower, sweats, clammy hands, severe acute attention,[like when given a shot of pure adreniline], myopia, or a sense of confined consciosuness, anxiety, panic and stress. As soon as the eather changes, sinsus open up and all anxiety goes, feel at peace again, and its like notihng happened and then just have my normal pain the narcotics seem to help, as in that pain, the nerves seem to confuse or overwhlem the brain, and tiredness exacerabates it.]
When it started I just didn't sleep for a week at a time, tried meds such as lyrica and all the newer ones and all those make me utterly ill and paranoid and the meds are almost as bad as the problem itself but, liek with Lyrica, I can sleep, but it doesnt stop the pain, just confuses it, sort of unfocuses it, so your brain doesnt knwo how to interpret it, but the lyrica efects my whole motor system and i get depressed, and its liek I am drunk and get, as in all the newere drugs, tremors and often as with lyrica, will loose strength in half my body. I do have to take it once every 2 weeks for a few days as the narcotics stop my digestive tract, so I take 2 days of severe uncomfort so I can cleanse my system. I am very sensitive to all meds......
But so I have 2 probs. The narcs help for the most the main nerve pain, and then xanax helps the briain funciton issues with weather. IF the barometer related problem is high, I have to take less narcotic as the narcotics make me a bit edgy, so I go down on them to the least i can take and handle the nerve pain.
But also, one last thing, startign in fall, it kicks in often liek clock work when the sun goes down and the temp drops 10 degrees here, [as I lve in a river valley" and will get the symptoms usually only at night and within 3 weeks of the start of fall it lessons and it will start to even out, such as after a few weeks nose sinuses will open around 9 pm.....and stress with go, and then it will kick in when a major front comes in, or barometer goes below 30. But like last night, barometer dropped severely and I am incapacitated and its liek having a fever, confusion and as usual, as the front passed this afternoon, I suddenly felt very well, calm, and normal. ENded as quick as it started...
This has happened for 4 years now and cripples me from mid fall to mid spring and often doesnt bother me during day, and hits hard when seasonal shifts happen and so forth. But, its quite severe. Its hard to get medical help, took me years to get where I am. ANd xanax, I take very little and often have to just use al my mental focus to wait it through and its how i live.
I was born with renal cancer, and had a kidney removed when I was 2 months old, and had chemo and radiation, it may be related may not be. Also had fingers removed from accident a few years ago, But that is not related and have no trauma frm that. Ialso tore my miniscus and am limited to what phsyical activity I can do.
But, other than discovereing its directly related to barometric pressure.....myself nor any doctors I have had have any idea other than, its a Autonomic Dysfunction.
But I'm 41 now, and wrote you as I dont have disability, have only a general practicioner, who is a saintwho helps me for free and I really want to get better find work and start a family someday. This illness gets in the way....
I can't afford any real medical care. But I ask for any advice or insight about this. I may try to ask for more xanax but only on the days its severe as most the time in the day, or outside of bad bad weather, the other meds do well and my mental state is good most the time, I have general well being despite, probaly as I for years did deep meditation and honeslty it is very effective in itself.
BUt if any neurologist can help or phsyician who may have insight, I woudl be thankful as if I coudl get through this, I can focus on livig my life as, it is crippling for 3/4 of the year for the most.
Thank you