Spinal Tap Results

[JezzicaP]

I am a bit confused on these results...I have tons of crazy symptoms that have been consistent for 1.5 years now. The first thought was MS so they tested and these were the results. The question I have is, did they forget to say how many bands were found because that is no where on these results?
I have been diagnosed with MGUS very low protein of .4 although my symptoms continue and no one can determine what is wrong with me.


MS Profile+MBP, CSF

IgG, Quant, CSF 3.0 mg/dL                                  0.0 − 8.6 01
Albumin, CSF 18 mg/dL                                        11 − 48 01
Albumin, Serum 3.9 g/dL                                     3.5 − 5.5 02
Immunoglobulin G, Qn, Serum 1375 mg/dL       700 − 1600 02
IgG/Alb Ratio, CSF 0.17                                    0.00 − 0.25
CSF IgG Index 0.5                                               0.0 − 0.7
IgG, Syn Rate,CSF −4.4 mg/day                      −9.9 TO +3.3
Myelin Basic Protein, CSF 0.5 ng/mL                  0.0 − 1.2 01

Monoclonal bands were observed in both the CSF and serum. This
Oligoclonal Bands pattern is suggestive of a monoclonal gammopathy. Recommend
serum immunofixation follow−up testing for confirmation and characterization.

Oligoclonal Banding testing performed using Isoelectric Focusing (IEF) and immunoblotting methodology.

CSF/Serum Alb. Index      5                                    0 − 8

Relationship to blood−brain barrier:
Consistent with an intact barrier 100

Symptoms:
Joint Pain in Feet, Legs, arms
Numbing/Tingling feeling all over some days worse than others
Trembling some days
Icy Hot feeling on my face and ears - light most days now but heavy some days
Swelling of hands, feet, face often
Headaches 3-4 days a week
sinus pressure with no allergies - have been tested
confusion and dizzy at times
Muscle twitching, getting use to it and do not feel it as much but still happens daily
Muscle Pain in arms and legs
Tired 5-6 days a week. I have good weeks once in a while
Jaw Pain periodically
Rib Pain for 1.5 years prior to the attack that brought on all the symptoms above with no evidence of fracture.
Attack I had was similar to a stroke with no evidence of a stroke.

Hospital found one small white matter on my brain - 3 months later was re-evaluated by Neurologist that did the spinal tap above and said there was actually 4 white dots and that I could be having silent migraines. - I don't think silent migraines would cause all of the symptoms above.

I've had a Bone Marrow Biopsy with no evidence of lesions.
I get monitored every 3 months for the MGUS I have but I am told the MGUS would not cause these symptoms. I consistently have abnormal RF, CRP results showing there is inflammation although my Rheumatologist says I do not have RA and I do not have any autoimmune deceases.

During the time of my attack, I did have abnormal albumin, BUN, CRP and several other that are not handy at the moment. The only blood work coming back abnormal now are the MCHP BUN/Creatinine Ratio, potassium,
rheumatoid arthritis factor, c-reactive protein, quant.

So if you took time to read this, I appreciate any feedback. I am not allergic to gluten, my blood pressure continues to go up and down. at the time of the attack I think I was about 172 in weight but have confirmed it was not heart related. I think I've had every test anyone can think of...just tired of being in pain ever day...thanks!

[shadow3680]

lyme test should be done aswell those symptoms all fall into lyme disease

[Dr. Kokil Mathur]

Hi!
I am sorry to hear about your medical problems. The oligoclonal band ratio between CSF and serum is compared and found to be normal. Hence, MS is more or less ruled out. You appear to be having a monoclonal gammopathy, which could be a normal finding or associated with MGUS or monoclonal diseases such as plasma cell dyscrasias, amyloidosis, lymphomas and leukaemias. You need further tests like serum immunofixation for a confirmed diagnosis.
Other than this, again get serum electrolytes, vitamin B12 and vitamin D levels tested. Hypothyroidism and diabetes too should be ruled out. Your symptoms appear to be related more to rheumatoid arthritis or low vitamin B12 or D. It could also be related to decreased kidney function. So get all this evaluated again. It would help to consult a rheumatologist too. Take care!

The medical advice given should not be considered a substitute for medical care provided by a doctor who can examine you. The advice may not be completely correct for you as the doctor cannot examine you and does not know your complete medical history. Hence this reply to your post should only be considered as a guiding line and you must consult your doctor at the earliest for your medical problem.