Hi! We are parents of a 8 year old boy who was diagnosed with having static encephalopathy at 18 months of age. We have noticed over the past 2 to 3years he has been lossing skills and having troubles regaing them back. He was depakote for his seizures and went 3 years seizure free while on it. So his Nuerologist and us decide to try and take him off the meds. He was doing quite well and then about 4 weeks after being off the meds the he started to lay on his stomach all the time he quit walking and talking and did not reconize anyone not even people he saw all the time.He went all summer doing this. We went back to his nuerologist who refered us to Mayo where we saw another nuerologist and they put him back on Depakote but he put alot of weight which was bad for his health . While in Rodchester he had another MRI done that showed that there was more white matter on the brain .The doctor at the mayo clinic thought that while he off his meds that his brain was constintly seizing. Is this a common problem for a patient to seize so much that there is more brain damage and is there any kind of surgery that can be done to remove the damaged area or are we dealing with something more then just static encepholapthy now? He is now on Topamx and still has a break through seizure know and then and is losing his balance and still has not gain back this speech . Please if you could let us know what you think, it would be greatly appericated.
Sincerly Worried Parents,
Frank & Dawn
Depending on the underlying cause and severity of the epilepsy, but many pediatric epilepsies are severe and can cause continuous seizures.
Certain subtypes of pediatric epilepsy are especially associated with continuous seizure activity - namely Landau-Kleffner syndrome (associated with regresion of language) and CSWS (continuous sharp wave activity in sleep)
However, untreated epilepsy from an underlying structural lesion or maldevelopment of the brain can also cause very frequent seizures.
Very frequent seizures can have a detrimental effect on a childs development, wether this is related to actual physical damage that could be visualized by an MRI is uncertain and somewhat controversial
I'm not sure whether you mean there was more white matter (more myleination is a good thing) or more damage to white matter (but difficult to show that this was due to repeated seizures or just the natural progression/atrophy of the underlying disease
Frequently, even in static encephalopathies, there is a focal area causing most of the seizures which if identified sufficiently, can be removed surgically, providing seizure freedom or a significant reduction in seizures - however this is not a gaurantee, a variety of testing ie EEG of seizures, MRI and PET scans can determine the likliehood of successful surgery
We have a lot of experience in this type of case, and determining whether surgery is possible, and also doing the surgery, at the Cleveland Clinic Department of Pediatric Epilepsy - 1800 2232273 ext 42095
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