Sorry that your symptoms are persisting. The good news (yet not satisfying) is the completely normal work-up thus far. The most worrisome diseases have been ruled out. I can only feel the depth of your frustration as having real and worrisome symptoms yet nothing turns up. I can only suggest that you try and let the tincture of time either turn the tide towards normality or disease. If this was a progressive neurological disorder, something would have shown up on the EMG, MRI, blood work, and neurological exam. We have seen post viral illness have peaks and valleys and you just have to hang in there. I am sorry.
CCF Neuro MD
DEAR DR.,ON 3/14/01 I WENT TO THE RHEUMOTOLOGIST BECAUSE I COULN'T WALK ON MY LEFT HEEL. THE ARCH OF THE FOOT WAS ALSO BOTHERING ME AND MY TOES WERE NUMB. THIS CAUSED MUCH PAIN, THE RIGHT FOOT BURNED ON THE TOP, HE THOUGHT THERE WAS A SPUR IN MY HEEL AND SENT ME TO THE PODOATRIST WHO SAID AFTER X RAYS THERE IS NO SPUR THAT I HAVE A NEUROPATHY AND PLENTY OF INFLAMATION IN BOTH FEET, AND SENT ME BACK TO THE RHEU. AFTER GOING BACK HE SENT ME TO THE NEUROLOGIST AFTER PUTTTING ME ON NEURONTIN 300MG,AND INCREASED AFTER 1 WEEK TO 4 TIMES A DAY.AFTER ONE MONTH,NO HELP,NOW HE GAVE ME VICODIN FOR PAIN.NOW I'M AT THE NEUROLOGIST WHO ORDERED EMG'S, FIRST OF THE LOWER EXT. AND ONE WEEK LATER THE UPPER, AND INCREASED THE NEURONTIN TO 600 MG. 3 TIMES A DAY, THIS IS WEEK 6 AND STILL NO RELIEF,ALSO I HAVE HAD 2 KNEE REPLACEMENTS AFTER FALLING IN A FLOODED BATHROOM,NOT AT HOME,AND THE PAIN RADIATES DOWN THE MIDDLE OF EACH LEG TO MY TOES AND ALSO THE BACK OF THE LEG. ALSO I HAVE CARPAL TUNNEL,AND HAVE THE MUSCLE IN EACH ARM INJECTED WITH PREDNISONE SEVERAL TIMES AS I COULN'T LIFT THEM TO EVEN COMB MY HAIR. I ALSO HAVE DEGENERATED DISC DISEASE OF L3,4,5,AND S1,I JUST HAD AN MRI AND THERE WAS NO CHANGES,ALSO I HAD A GASTRO WORK UP, AS I HAVE FECAL INCONTINENCE,WHICH THE GASTRO DR.SAID IS ANAL SPHINCTER,AND SOME OTHER DAMAGE,HE WILL TALK TO ME ON MAY 22, AND NEUROLOGIST WILL TALK TO ME MAY 21, THE GASTRO DR THINKS I HAVE MS,AND THE NEUROLOGIST THINKS PN. IF I WALK IN A STORE TO TRY AND SHOP WHEN I GET HOME I SLEEP 3 HOURS,I'M EXHAUSTED, IS THE SYSTOMS OF PN OR MS,ALSO I HAVE HAD 2 BLADDER SUSPENSIONS AND NOTHING HAS HELPED,I HAVE HYPERTENSION,HASHIMOTO'S THYROIDITIS, THIS FIRST STARTED WITH THE MUSCLES IN THE ARMS IN 1990 AND I WAS HOSITALIZED,THEY SAID R,A,OSTEOARTHRITIS,POLYMOLIGIA, FIBROMOLGIA,AND I DON'T KNOW WHAT I HAD,JUST HE PASSED UNTIL THIS FEBRUARY,I JUST COULN'T WEAR ANY SHOES,ON THE SIDES OF MY FEET,IT BURNED WITH PAIN SO BAD I COULN'T STAND IT, DO YOU THINK THE DRS ARE ON THE RIGHT TRACK? I AM SO CONFUSED, I HAVE VERY BAD DAYS NOT ONE WITHOUT PAIN,ITS TERRIBLE, PLEASE RESPOND, I HAVE A SON WHO LIVES IN LOVELAND, OHIO, AND IF NECESSARY I CAN COME TO THE CLEVELAND CLINIC, WE LIVE IN FLORIDA. I THANK YOU FOR YOUR ATTENTION, SINCERELY, PAT BRNOVICH