I am a 32 year old female who has been generally healthy. I am recently (3 years) diagnosed with Celiac but that seems to be under control with diet. I recently had a cold at Christmas, followed by a sore throat a little over a week ago. I had also recently flown to Alberta and had been a little run down from my travels.
Monday morning, I noticed the joints on my left hand seemed stiff. I've had carpul tunnel (sp?) so O wrote it off as that or, possibly a pinched nerve because my back and neck were quite sore. By the afternoon, both hands, my left elbow and left shoulder felt stiff and achy. I saw an active release chiropractor at 5 and generally started to feel better (once the initially rush of blood and healing fluids subsided). I still felt stiff; however, and upon retiring to bed noticed that my knees were also very stiff as were my ankles. My hands got steadily worse to a deep painful ache and in the middle of the night my feet ached and the pain is inexplicable. I would up in the ER where they assumed it was inflammation and gave me a shot of Toredol and sent me home. I was back an hour and a half later with the same problem, they gave me demorol. That seemed to help me sleep and I was to come back for blood work. All blood work this time, and subsequently two other times through the course of the week have come back with no irregularities, no increased white blood cell count, no inflammation, etc. Upon having a nap monday - I awoke with the same hand and foot pain and received a shot of demorol. That only lasted until I fell asleep that night and awoke with the same problem - this time demorol and toredol.
The general trend I've noticed now, I wake up extremely sore, to step out of bed feels as though I am walking on feet riddled with broken bones, my hands feel as though the muscles and tendons have stretched for the first time ever, my knees are extremely tight and sore, I feel weak all over but more so from what feels like intense deep tissue bruising everywhere. After a couple of hours I get along much better with some mild aching. I was thinking that I was getting better because the episodes of hand and foot pain were only occurring at night. BUT... for the first time in thepast 4 days I've had a nap. During my nap - I noticed thats when everything tightens up, my feet ache, my hands ache... I wasn't having naps the past few days thats why I had no trips to ER. Consistently, every night I wake up in indescribable agony. My buttocks, thighs, hamstrings, and now lower back and abdomen (its progressed the past two days) feel internally bruised and the skin feels exactly like a severe sunburn. There is no bruising, no fever, not even redness. At most, when my hands and especially my feet throb, the vessels are all evident and engorged. I can see blood vessels in my toes themselves that I've never seen before but my feet only slightly swell to where the skin just looks taught and shiny. The pain is unbearable. The demorol (75cc) and toredol (60 cc) shot on Thursday night did nothing to help the pain so I was given Anatriptoban (sp?), and was already on pregabalin/lyrica. It helped enough that I managed to sleep. Not to get you lost, so heres a summary.
Monday - pain in hands progressed to other joints, nighttime intense pain in hands and feet, ER gave Toredol, 2 hours later, same problem, ER gave Demorol.
Tuesday - blood tests, showed nothing. Doc figures Viral or Neurological. Referral to Internist.
Tuesday - after a nap, hand and foot pain in afternoon, given demorol, dif. docc agrees not rheumatoid, likely viral or neurological. Does more blood work and neck xrays. Nothing. Another attack in evening, ER gave me Toredol/Demorol and the doc. prescribed Lyrica (75mg)/Pregabalin (75mg).
Wednesday - the usual, wake up extremely sore and stiff everywhere, notice that the sunburn feeling is spreading upwards to abdomen and lower-mid back. Also notice extreme hypersensitivity to heat. Tried to have a bath - toes and hands felt like the knuckles/joints would explode. Subsided after a while out of the tub. Can't wash dishes - hot water pain to my hands. On one dose of Lyrica/Pregabalin twice a day. Notice that my jaw and the base of my tongue hurt. Occassional shooting pains in my ears. Jaw and all the noted pain cotninued throughout the next few days as well.
Wednesday evening - usual tip to ER after couple hours sleep. I now have a standing order for toredol/demorol. New ER doc thinks rheumatoidal even though all others say no and my ESR is 10 and another registered 6. She prescribed Prednisone. Took only that evening dose.
Thursday - same morning pain that wears off as day goes on. Two doses of pregabalin and Lyrica. Same evening visit to ER after I fall asleep - dose of toredol/demorol and half hour later no relief. Call ER doc, hour later same pain, he order Anatriptopan (sp?). Eventually pain subsides.
Friday - sore everywhere as usual, extremely painful to walk, bottom of feel and muscles in feet/joints, in agony for at least an hour. Did not take prednisone. On the Lyrica/Pregabalin. Evening trip to ER - extremely painful. Started in left foot only. After in ER, and around time of Toredol/Demorol shot, my right foot started and went through the full pain motions as if untouched by the drugs.
Sat (today) - usual extreme pain to walk first thing in morning. All the same bruised/sunburnt feelings, abdomen feels tender as if the organs are a little bruised. OF NOTE: first time in three days or so I tried to have a nap. Sure enough after laying down, my knees start to ache, my feet almost got painful enough to consider ER and my hands started to ache. It happens when I lay down!!! So now I wonder is it circulatory? Is it neurological.
The internist only looked at my ER notes and bloodwork and responded that he couldn't help me. He too, thinks its neurological. I've never had a headache, fever, redness, or anything with this. THey are completely baffled and I am in pain. I need some direction, some ideas even to follow up on. Anything!!