Symptoms of Peripheral Neuropathy

[honky]

Hi hope you can help.  I have been diagnosed with Peripheral Neuropathy and have had symptoms of burning in my feet for 3 years and my lower legs for 2 years.  I also have severe joint pain and would like to know if neuropathy can cause joint pain too.  Also I am experiencing what feels like bad muscle aches in the thighs - could this be the neuropathy spreading and how do I know if this is the case?  One other question can neuropathy come in conjuction with other things such as fibromyalgia.  Also am constantly nauseous and think this surely cannot be the neuropathy!? I have gone from exercising on a daily basis to virtually house bound in just a couple of years.   Many thanks for your help.

[grandmommy]

You did not mention rather you are having any pain or tingling with the numbness.Let me know.

[BrodiesAunt]

I am 23 years old and I am having bad numbness in my hand, legs, and feet.  I had a MRI done and nothing showed up.  I am headed back to the doctor this week but does anyone have any idea what could be wrong?  

Thanks,
BrodiesAunt

[grandmommy]

Hi, I'm new to this website. I was diagnosed with polyneuropathy in june 2005. I was given a nerve conduction test by a neurologist for the second time thefirst was about three years ago when he thought it was the beginning of of neuropathy. My doctor put me on vitamin B12 injections of 1000mg every two weeks. It does help with the pain, numbness and tingling until a few days before I am due for another injection, then I go down hill. All I want to do is sleep because I am so exausted and it's painful to do anything. I feel as though I am in a slump.I've been on the injections for about 10 weeks. I went to the doctor for a recheck on Monday, I asked him to let me take the injections every week so that hopefully I won't go into that slump, but he said it would be too much. He suggested I take a B12 pill daily with my injections. I am doing so but now I can't get rid of the electric feeling that goes through most parst of my body. I am constantly moving trying to make this electricity leave my body, but I just look like I'm on drugs or something because I can't be still. Doc told me to think about taking neurontin and let him know in 5 weeks when I go back for a recheck. Anyone have an idea about how to get rid of this electric feeling in my body? And I read that pfizer co. was getting sued for neurontin being prescribed for other uses other than seizers due to the terrible side effects such as wanting to commit suicide. Can someone help me make a decision?

[Raqui]

Thanks for the forum.  My toes began to go numb approx. 5-6 years ago, and the numbness began to spread to various parts of my feet, and then up to my ankles and then the sharp burning pain began, etc. etc., and numbness going up my ankles and into lower legs.   Had complete workup by neurologist: blood tests, nerve conduction, etc.  No malabsorp. of B12.   Conclusion was that the peripheral neuropathy was simply genetic and nothing could be done.  I have been taking elavil 50 mg. and it has cut down the pain to the point that I can periodically walk barefoot again, though it's somewhat like walking on hunks of wet socks. I just looked at the info on the insert to the Aciphex (Pariet) I have been taking for approx. 5-6 years...for acid reflux.
       Question:  if the Aciphex is not/has not caused a malabsorb. of B12, might there be any other reason for the neuropathy that might be connected with the aciphex?

Thank you.

Manuela

[crftldy]

Hi everyone, about a year ago I had gallbladder surgery and I haven't really felt good since. First I started having abdominal pain, which would sometimes even kill me in my back. Anyway, they did ultrasounds, an ercp, x-rays and it seems like every test that I can think of. All of them always came back normal. I couldn't understand this, because I was hurting so bad. My family, including my son thought that I was just depressed and having nerve problems. Mom mom said it could just be my age, since I just turned 41. Anyway, I just kept trying to ignore the pain. It would go away for awhile, but come back again sometimes even worse than before. I sometimes hurt so bad that I couldn't get off of the couch. This time, I started hurting in my legs, so bad that I could hardly stand it. It started when I was laying in bed or when I'd put my feet up. They would burn so bad that I thought that I was going to die. Then it got to where they hurt even whey I sat up. Like right now, while I'm sitting here at the computer. They are hurting so bad. They start burning, and then they feel so cold. Anyway, Now, when I walk It hurts me. It hurts clear up into my thigh of my left leg. The bottom of my foot feels like it's bruised. Can hardly walk onit. What's weird, is sometimes at night, my insides will feel like they are on fire, I will get a pain in my pelvic area, then it goes to my abdomen, and then my shoulder goes knumb, then my hand and arm. So, I went to the emergency room last night. I couldn't take the pain anymore. I finally got a doctor who told me somthing. He told me that it was a neuropathy. He mentioned that people that have Lupus and Vasculitis have this problem. I've been on Dilantin for about 20 years now, which after researching is known to cause auto-immune system diseases. Is there a certain test that I should ask for to make sure that it's just neuropathy, and not Lupus or another disease. Also, I've heard that with Lupus you get a rash across your face, is that true in all cases? I would really appreciate any help that anyone can give me. Sorry my message is so long, but I'm really desperate for help. It's bad enough hurting so much, but I hate the not knowing what it could be.

[Frenny]

To all with nerve pain: I'm in your corner!  This life-changing type of pain is undescribable.  I have idiopathic peripheral neuropathy (and fibromyalgia).  The EMG test did not show this (my neuro ordered it only to see if I had "large fiber" neuropathy).  
These tests that showed my neuropathy: skin biopsy and Q-SART.

My troubles started after a car accident with whiplash.  Got worse and had to cut back on work to 20 bours per week, then had to stop working.  Cannot travel much or excercise much either.
I am interested in joining or starting a neuropathy support group in Central Ohio.   Have you noticed that people who do not have this "invisible" disease have difficulty understanding it?  I'd like to meet others and focus on how to best deal with our situations and concentrate on staying positive!  We could meet at a restaurant for starters.  If anyone is interested please post!  Thanks, Jenny
P.S. I also think our postings here on this forum are a great way to share and learn.