My favorite person in the world has been left with Thalamic Pain Syndrome due to a stroke of the thalamus. Please, where can I find help for her? She suffers so terribly. She has a motor cortex stimulator put in with no relief. Some say she should have never had it done. I just want to find her the help she needs...even if it is just help for her spirit.
Thank you so much! My Aunt thanks you also.
Unfortunately, the thalamic pain syndrome (also called Dejerine-Roussy syndrome) is very difficult to treat. We try medications such as Tegretol, baclofen, amitryptiline, and others. Stimulator implants are controversial, but some patients have good luck with them.
If someone thought to do a stimulator, then she has probably already seen one or more pain specialists. Perhaps a second opinion for a fresh start might help. A careful review of all medications tried and assessment of each medication trial could be of benefit. Sometimes a fresh doctor thinks of something someone else overlooked.
It is possible that no treatment will work. However, some people do get some relief from symptoms, so it's worth pursuing aggressively so your aunt doesn't have to live in such agony.
I hope this helps. As you know, this information is for general medical education only. Any specific comment regarding diagnosis, treatment, and prognosis must come from your doctor after appropriate evaluation. CCF MD mdf.
Copyright 1994-2018MedHelp.All rights reserved. MedHelp is a division of Vitals Consumer Services, LLC.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.