Thoracic spinal cord cavernoma

[juanmcgee]

I would like to know if there is anyone out there that has been diagnosed with this problem.  I have had surgery due to this procedure and am still having pain.  I am also having fluid collecting now at the site where I was operated the doctors refer to this as a "CSF Collection". It has been over a year now and am still having pain in both of my legs.  I am not able to walk for long periods of time and feel numbness tingling sensation in feet.  I have been to numerous doc appointments and am being told there is nothing they can do.  Please help! I would love to talk to anyone that knows anything about this.


This discussion is related to Remove a Cavernoma from the inside my thoracic spinal cord..

[2333]

Dear Sirs,
       I have started a Support Group for Spinal Cord Cavernomas sufferers on Facebook.  HOWEVER I DID NOT GIVE YOU PERMISSION TO PUT YOUR SITE ON MY FACEBOOK PAGE.  Please remove it immediately!
     For anyone who has a legotimate reason for joining this support Group, go to my Facebook page, Myrna Sarowitz.  We can start s helpful conversation.
    

[Kavita12345]

Hello,
I hooe you are better now..
I have been diagnosed with a cavernoma in my spinal cord at C6.. I am contemplating operation, as I have pain and weakness in my left arm and leg..
Please could you tell me where you got your operation done, and how you are doing now.

Thank you for your help. I know I have not answered your question, but I hope you can answer mine and help me in my dilemma.