I really appreciate being able to read this forum and see that I am not alone. A year ago I started with severe cramping/tingling in my arms and legs (unable to walk at times). Many different things have shown up over the last year from sight problems to numbness.
NOW: Severe cramping in legs, hands, arms. Sharp pains in head especially around eyes, ears and temples. Feeling of being swollen.
Cannot stand to be cold, fingers get purple and throb.
Problems breathing (feel like someone is standing on my chest)
I had a feeling that something was wrapping/travelling around my head. This leaves numb areas. I am numb around my eyes, forehead and through my jaw (if feels like when you are really cold and you cannot move your mouth).
Severe muscle pain in back, arms and legs. The muscles get really hard to the touch. Retaining a lot of fluid and gaining weight. When I run my fingers down my arms and legs the muscles feel lumpy (maybe like a sausage with lumps in it).
I get the feeling of being overwhealmed and confused alot. I will be in a grocery store and not be able to stand up, and get confused as to what I am there for. Frequent incontinence.
Testing to date:
MRI last spring-normal
Blood tests: lupus (DNA string? thing this is right?)
ESR, ANA, Lyme serology, HIV, CA, MAG, Serum Lead, Mercury, Amylase, Protein, RF, plus all of the 'regular' stuff. Read about a rare neuromus. disease treated by antibiotics, but cant find now.
Looks like ALS or MS to me? HELP PLS