Could you please tell me the name of a Doctor that sees children under 4 with Dystonia? Everyone I'm led to sees adults and I'm not finding any helpful results for my 2 1/2 year old daughter. She has Dystonia caused by a prescription medicine called Trazadone. That was confirmed by Dr. Abe Chutorian in New York. We live in Kentucky, but will travel where ever. We have also seen Dr. Cynthia Camilla in Chicago. Theses 2 Doctors are both adult specialists. My daughter has this condition all over her body and it seems to be getting worse and more painful spasms. She is currently on Artane but it doesn't seem to help at all. We are desperate for a Doctor familiar with children with this condition. I feel helpless and lost. I am also intersted in Hyberbaric Oxygen Therapy. Please tell me if there is a clinic close to Nashville, TN. that offers this treatment?
Thank You, Julie Mom to Gracie
Case reports in the literature have demontrated that some of the patients with trazodone related dystonias get better with removal of agent or treatment with benadryl IV in the acute setting. I am concerned as your daughter's condition is progressing despite the assumed removal of trazodone, that she may have something else such as a genetic abnormalitiy or metabolic problem. I agree, she should definitely see a pediatric neurologist for appropriate workup. Drs. Friedman and Bruce Cohen here at the CLeveland CLinic are outstanding peds neuro docs that take care of dystonic children. Baclofen pumps, deep brain stimulation are some of the treatments that we offer here. I don't know of any clinic near TN offering hyperbaric oxygen therapy, but that doesn't mean there isn't one. Your daughter needs the workup. I would not be satisfied with the diagnosis of trazodone, unless everything else was normal. Good luck to you.
Copyright 1994-2018MedHelp.All rights reserved. MedHelp is a division of Vitals Consumer Services, LLC.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. MedHelp is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.