Hello! I've been experiencing symptoms for over a month now. I'm scheduled to see a Neurologist this month, but would love some input from anyone before then.
I'm cross-posting this from the Undiagnosed Symptoms community since it's likely a neurological condition.
I've experienced ear fullness and popping for over two years, but I don't know if that's connected to my current symptoms.
At the beginning of January I noticed a small spot of numbness on the right side of my nose. Over the next weeks that spread to the bottom half of my entire face, left and right. My corneal reflex was unaffected, and only the mandibular and maxillary branches of the trigeminal nerve were impacted. Within just the past few days it has begun to spread to the area above my eye on the right side, leading me to believe that now the top branch of the nerve is being affected.
The numbness is not complete anesthesia, and there isn't pain, but there is a loss of sensation and discomfort when the affected areas are touched. It has also impacted the inside of my mouth- roof of mouth, gums, teeth, and anterior portion of tongue.
In addition, I have been experiencing some ear/jaw pain, and almost constant headaches, which are particularly bad when I wake up, and in the morning. The headaches range from throbbing, to a feeling of pressure. My scalp is tender to the touch. I have feelings of being more clumsy and having more difficulty speaking or recalling words, etc, but that could easily just be "in my head" so to speak. Plus, it is harder to speak and eat now that my mouth feels like it's 5 times larger than usual.
I had an MRI which supposedly came back clear, but I will be getting the films sent to me in order to show them to the neurologist. I look completely normal, and I have no paralysis or loss of function.
People keep telling me about what they think it is, such as Vitamin B12 deficiency, thyroid problems, Vitamin D deficiency, Lyme disease, etc, but I don't have any of the other symptoms that those things cause.
Has anyone else experienced something like this, or have any idea what it could be?
In the Undiagnosed Symptoms Community Neurosarcoidosis was suggested, which sounds plausible. I'm just confused because my numbness and paresthesia is bilateral, and for almost all of these neurological conditions the symptoms typically present unilaterally.
Thanks for any help you can offer!