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Avatar universal

Twitching and terrifed

I've been twitching all over now for about 11 months. Sometimes you can see the skin move, like in my hands, feet and face. It started december 99' last year, now being september 13 2000. Since it started I've had an MRI of the head and spine 3 emgs and nerve conduction studies - one performed by a different neuro (second opinion). My last emg and NCS was 3 weeks ago. Every test has come back normal, including physical examinations by the two neurologists. Both said BFS. I don't have any weakness. My neurologist is very well re-spected and I don't have any wish to see another one but it's not getting any better and I'm just terrified that I have ALS. I'm 31 years old with a husband and a 2 year old daugther that I absolutely adore and the thought of maybe having ALS and thus not being able to see her grow up is breaking my heart, I'm getting to the stage where I'm crying alot, thinking that I've only got so much time left. I know this sounds completely melo-dramatic but If it was just me I had to worry about then it would be a different story, I probably wouldn't care. I just really need some answers because I feel like my life has stopped due to fear of this disease. As I said before I really respect my neurologist but I don't feel comfortable asking him lots of questions. How long after twitching starts does it take to show up on an EMG if you have ALS? Please help.
                   Karen
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Avatar universal
I had the same exact symptoms as Karen does. It all started a year ago when i had series of stressful events in my life. I was worried so much despite of the negative results of EMG, CT and blood work. Doctors told me they are psycho-somatic. Although in disbileif, I finally convinced myself in not having anything fatal, started back on exercising regularly and in a lot better mental status now. My consentration now is to  control the symptoms by practicing a healthy life style. Twitching seems to have deminished greatly, although tingling and altered sensation still remain. I think exercising must have helped my twitching, since i know it always returns after being inactive for a few days. I am still skeptical that all these sprouted from my psych, It sure did not harm me to believe that.
Helpful - 0
Avatar universal
I had the same exact symptoms as Karen does. It all started a year ago when i had series of stressful events in my life. I was worried so much despite of the negative results of EMG, CT and blood work. Doctors told me they are psycho-somatic. Although in disbileif, I finally convinced myself in not having anything fatal, started back on exercising regularly and in a lot better mental status now. My consentration now is to  control the symptoms by practicing a healthy life style. Twitching seems to have deminished greatly, although tingling and altered sensation still remain. I think exercising must have helped my twitching, since i know it always returns after being inactive for a few days. I am still skeptical that all these sprouted from my psych, It sure did not harm me to believe that.
Helpful - 0
Avatar universal
I had the same exact symptoms as Karen does. It all started a year ago when i had series of stressful events in my life. I was worried so much despite of the negative results of EMG, CT and blood work. Doctors told me they are psycho-somatic. Although in disbileif, I finally convinced myself in not having anything fatal, started back on exercising regularly and in a lot better mental status now. My consentration now is to  control the symptoms by practicing a healthy life style. Twitching seems to have deminished greatly, although tingling and altered sensation still remain. I think exercising must have helped my twitching, since i know it always returns after being inactive for a few days. I am still skeptical that all these sprouted from my psych, It sure did not harm me to believe that.
Helpful - 0
Avatar universal
I had the same exact symptoms as Karen does. It all started a year ago when i had series of stressful events in my life. I was worried so much despite of the negative results of EMG, CT and blood work. Doctors told me they are psycho-somatic. Although in disbileif, I finally convinced myself in not having anything fatal, started back on exercising regularly and in a lot better mental status now. My consentration now is to  control the symptoms by practicing a healthy life style. Twitching seems to have deminished greatly, although tingling and altered sensation still remain. I think exercising must have helped my twitching, since i know it always returns after being inactive for a few days. I am still skeptical that all these sprouted from my psych, It sure did not harm me to believe that.
Helpful - 0
Avatar universal
Kimberly, I get twitches like that that have lasted for a couple of months at a time in three different spots on my right foot. They are very fast and they almost seem  constant sometimes. Those are the worst. I wish I knew what causes these twitches. I hope we all find an answer soon. Laura
Helpful - 0
Avatar universal
I used to think that I was the only only one with these anoying twitches!  I guess it makes me feel a little better to know that I am not some sort of freak or something!  Thank you all for your postings!

Glad
Helpful - 0

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