A related discussion,
Hypochondriacs was started.
Have you asked your Neurologist about the GAMMA KNIFE proceedure? It is out-patient and has no incision. This is usually done when medication fail to work.
Ask your Neurologist about the GAMMA KNIFE proceedure. It is out patient and no incision.
I have been on 2400 mg Neurotin for 6 months. The pain was from the side of my nose through the eye to the scalp. HORRIBLE. It rarely affects my eye now, but the pain is now in my jaw. I've noticed that stress addes to the attacks. I'm thinking about having the Gamma Knife proceedure done. I've been told that it is the way to go when medication doesn't work. Has anyone had this done?
I pray for the day to come when there is relief for all with Trigeminal Neuralgia.
I was recently diagnosed as having Tigeminal Neuralgia.
I've had this disorder for 8 months and none of the medications like neurontin , tegretol , even narcotic painkillers have helped me.
is it illegal to be treated for pain in america?
i'm suffering and on the edge of suicide and my family isnn't taking me seriously. they just say 'oh two asprin a day is all you should need' i've been out of work and i've lost my social life due to this terrible disorder. no one should have to suffer through it and my neurologist just tells me 'continue taking neurontin its not had time to settle in' and ive been on neurontin for 4 months now and viox. and lortabs. Going through different emergency rooms and all they do is give me a bottle of weak pain medicine
i want to die so bad right now
i went to a emergency room recently and waited 8 hours. sufffering IN the emergency room.
i shouldnt have to suffer should I?
my doctors are NEVER available they just thinki m a drug seeker.
it even hurts me to type this message.
Hello everyone I anew to the board.... and thank god I have found possibly some questions I can ask my physcian.
First of all, I was diagnoised with an aneurysm on March 11, 2002 I had surgery Aprill 11,2002. Since this time I have had excrutiating pain on my right side of my nostril area and I have had three root canals my palate is sore my gum line arounf my tooth is very sensitive I have had all kinds of CT scan from endodontis, ENT specialist and from ER on the brain and no one can find anything wrong is there a possiblity of Trigeminal Neuralgia if so how can I be diagnosed or what test should I suggest to my physcian.
Honey1
I have recently been put on Topomax for Trigeminal Neuralgia after Amitryptiline was not effective and I had an allergic reaction to Trileptal. Doctor thinks I may have atypical trigeminal neuralgia. I have a constant aching in my upper left teeth and gum line. Blood work also recently showed positive for an autoimmune disorder, possible sjorgen's syndrome. I often times have a very sore palate and some blistering. I have been to several doctors and noone seems to know what to do. Any suggestions?
I found that Tegretol helped immensely with my Trigeminal Neuralgia and I did not need any other pain relief. I needed 600mg per day and it took about 3 weeks to be effective. I now find that 300mg per day keeps it away.Hope your Mum is as lucky as me.
Hi Woodsy,
I'm a physiotherapist in Liverpool UK.
Pains to the head/face are frequently attributed incorrectly to trigeminal neuralgia. Pain in this area often originates from the neck at C3 or C4 levels. The nerve roots can be irritated by degeneration such as spondylosis or osteo-arthritis. Make sure that your mother has been correctly diagnosed (but bear in mind it ain't easy sometimes!).
www.glennisjones-physio.co.uk
1.Also depends on dose. Should be slowly titrated upwards for adequate pain relief using that as your guide as well as amount of side effects. I would give it a couple more weeks and talk to your doctor about how high they want to go. Your mom still has some room on it. Tegretol is usually pretty good for nerve pain in general. Other alternatives to consider for nerve pain: neurontin, trileptal, and elavil which all have a better side effect profile.
2.I'm always reluctant to prescribe narcotics for chronic pain syndromes due to the addictive potential. It's better to max out on the non-addictive meds such as the ones mentioned above. However, if your mother is simply using it as a bridge until the medication to be used longterm kicks in, then this may be ok. She just has to be careful and if there is a suspicion of addiction, she should seek help with pain management/counseling. Good luck