Wow...I was going to say parathyroid, thyroid, or pituitary, -but it seems you've had those checked...Have you been checked for hepatitis C as well? It can have a cascade-effect of things that affect your endocrine and nervous system as well (and immune, etc...) The elevated calcium will cause many of these symptoms because it can also affect many of your hormones creating a "perimenopausal" effect of hot flashes, night sweats and palpitations, and it could also be antagonizing your thyroid creating a mock hyperthyroidism...-Just curious, what was your PTH, calcium, ionized calcium, TSH, and Free-T (t-3. T-4) numbers? Did you actually get a copy and look at them? -I had to do this with my Drs, and I ended up diagnosing myself because the "high" normal values weren't evaluated correctly...If you didn't know this already, your PTH and calcium levels should either be in-range, or at opposite ends from each other. If one is high or "high normal" then the other should be "low" or "Low normal"...I think your diagnosis is there in your labs, but it takes the right person looking at them to find it...I'll be waiting to see what you've found...best of health...(((HUGZ)))~MM
Em, also, get your doc to draw blood and check where your Vitamin A is at. Too much can cause many of your symptoms, headache, hair loss, itching, menstrual irregularity, depression, fatigue, the list goes on. There are also various causes of too much Vit A, to include a problem with the fluid pressures in your head, so your neck hemangioma just might be the source of all this, and your doc can do a spinal tap to (a) see if you've got intracranial hypertension and (b) temporarily relieve pressure just by doing the puncture until they can figure out how come you have it. Also, some cholesterol-reducing meds and progesterone can increase Vitamin A. And even check how much Vitamin A is on the bottle of your supplements, 5,000 IU or less is ideal. But my thoughts are strictly if Vitamin A figures into this somehow. See, a high calcium reading, other than being caused by hormones like MedMom said (thyroid, adrenal), can also happen from too much Vitamin A. One more thing, change shampoos for a while, just in case. And while you wait to see if you've got black mold in your house, do a little window shopping for another place. And carve out some ME time. GG
Thanks very much to you both for your thoughts and suggestions. I really have no idea what my actual numbers have been on any of the labs I've had done - the calcium was the only one ever specifically mentioned to me. The truth is, I'm not entirely of everything I've had checked in the last year (and/or I'm not sure what certain tests mean or what the docs were "looking for"); I have just assumed that they (pcp & endocrine) knew what they were doing & would alert me if anything stood out. Almost 14mo later, I sure feel "abnormal" with little explanation. With all the supposed "normal" results, I wonder if my complaints are taken seriously or if they suspect I imagine things- I'm sure I'm not alone with this frustration. That said, I am in the process of obtaining actual copies of all of my labs & other records. It seems such an obvious and proactive measure as you mention it MM, but I really hadn't considered that- thanks. I will post more info about the labs after I get the copies.
GG, ahhh, yes... ME time... something that always seems just beyond arm's reach!! ;) You are right, we all need some peace and relaxation now and then - and I probably WOULD benefit from trying a little harder to make it a priority for myself on occasion. :) It is interesting to me that you mentioned the vit A. When I first began developing symptoms (when hair suddenly started coming out diffusely in massive handfuls and the headaches & fatigue appeared out of nowhere), I did a little bit of research & wondered about "vit A toxicity". The first bout of labs I had done w/ my pcp assured him that I was in "great general health" and there was "absolutely nothing unusual" at the time - that is when he referred me to the endocrinologist to access hormone/endocrine possibilities. You know, again, I kind of just assumed that vitamin deficiencies/abundances would have shown up along with iron levels etc in those first labs. The endo never mentioned it either - no conclusive results there (the calcium highs have shown up just in the last four months, but I'm not even sure if calcium was checked prior to that). The multi-vit that I take (usually daily although I forget sometimes) has 4000 I.U.. The bottle states that it is 100% beta carotene. (The calcium in this supplement by the way, is only 200mg- says its only 15%). I also eat a fair amount of vit A rich foods - but I really always have. I wonder if people can develop a sensitivity to it suddenly for some reason??? I feel so silly for not having been more involved and informed about what my docs have been doing/not doing & about what I have been "checked" for. Always something to learn, right?
Maybe it is all (or largely) related to the hemangioma, GG. I have never seen a neurologist before - only general docs/surgeons, vascular specialists, and PT - - it was deemed inoperable a long time ago & really it just gets "watched". It will be interesting to see what the neurologist has to say about it all- - I just found out today; the insurance went through and I have an appointment on the 7th!!!
Meanwhile, I am taking both or your advice and looking into what has been evaluated thus far, and educate myself a little more on what those evaluations/results could mean.
I'm so very, very appreciative to you both for the help!!! I will post again when I have a little more info. -Em
Something else that I found very helpful (although you may get some strange looks from Drs and nurses) was to keep a copy of my own personal medical record. I went through a period of about 3 years where I was seeing 10 different Drs for different things. Most of them were specialists and surgeons, and few of them knew my entire history (actually, I think only my GP really knew everything...) Anyhow, by getting copies of every test, diagnostic disk or film, and diagnosis/ treatment and putting them in an organized binder, I was able to drag this thing to each Dr appt and offer copies of test results they didnt have. It also made it easier to keep track of what I'd had done and when. (I started out having perimenopausal symptoms at age 38, had 7 kidney stones in two years, was diagnosed with hypercalcemia from a parathyroid tumor (had it removed), got a dirty needle stick at work and caught Hepatitis C, and went through 6 months of chemotherapy-like treatment, had a thyroid storm, and then had hypothyroidism for a while, and also had gall bladder surgery...I think there was more in there somewhere...LOL
Anyhow, there was a lot going on, and being proactive got me through it...I wish you health with your journey...(((((HUGZ)))))~MM
P.S. Look up the symptoms of hyperparathyroidism and see how they match your symptoms. (Warning, there is info about cancer, but don't let it freak you out...)~MM