Neurology Community
45k Members
Avatar universal

atypical (diabetic) neuropathy?

suffering from a range of painful neuropathic symptoms- pain, burning, stabbing, jabbing, painful hypersensitivity even to light touch.  These are experienced in a variety of locations, quite symetrically, including scalp, legs, feet, torso and buttocks. on buttocks is sufficient to make sitting for any period of time. Have had to take 10mths off work and move back to parents house becoming effectively housebound.

I am 30 yo and have type 1 diabetes since 18yo.  Diabetes is highly brittle and bsl varies widely despite extreme care.  MRI, nerve conduction, csf, eeg all normal.

Onset was over several months of continual worsening and changing ov precise symptoms.  originally more back pain, difficulty holding any weight, other symptoms gradually became bigger problems.

Also suffered from severe muscle spasms, now reasonably well managed by meds.  Also, several years ago had serious problem with stabbing pain on soles of feet- nerve conduction tests were normal, but problem fully resolved itself after approx 2 mths.

I'm having serious problems obtaining any diagnosis, and have clashing diagnosis from different doctors (ranging from 'cannot be diabetic neuropathy', 'is atypical diab neuropathy', 'psychosomatic', 'chronic pain syndrome').

This is having a devastating effect on my life and I welcome any further information, suggestions, possible diagnosis, or similar stories.

1 Responses
1478335 tn?1287374339
dear Mariana, you can ask Dr Bernstein your questions. Dr. Bernstein
F.A.C.E., F.A.C.N., C.W.S., FACCWS
Diagnosed in 1946, at the age of twelve, with type 1 diabetes
I have read his free book on little known and badly treated complications of diabetes.  His personal story is amazing. His methods are controversial. My doctor says with good control of blood sugars he does not see neuropathy which is what Dr B says too. I suggest you read Dr B's books and listen to his cd's (much of it is online for free - he is  very generous with information. he talks about neuropathy here http://www.diabetes911.net/readit/chapter23.shtml

"Dr. Bernstein will participate in another 60 minute Teleseminar and Webcast on Wednesday November 30th, 2010, at 7PM CST, 8PM EST, 6PM MST, 5PM PST, designed to answer your most important questions concerning diabetes and his thoughts on the latest developments in this area. The seminar is FREE but participation will be limited and you must register" at the website http://www.diabetes911.net/askdrb/index.php
Post your diabetes questions there.

Have an Answer?
Top Neurology Answerers
620923 tn?1452919248
Allentown, PA
5265383 tn?1483811956
1756321 tn?1547098925
Queensland, Australia
1780921 tn?1499305393
Queen Creek, AZ
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
Find out how beta-blocker eye drops show promising results for acute migraine relief.
In this special Missouri Medicine report, doctors examine advances in diagnosis and treatment of this devastating and costly neurodegenerative disease.
Here are 12 simple – and fun! – ways to boost your brainpower.
Discover some of the causes of dizziness and how to treat it.
Discover the common causes of headaches and how to treat headache pain.
Two of the largest studies on Alzheimer’s have yielded new clues about the disease