suffering from a range of painful neuropathic symptoms- pain, burning, stabbing, jabbing, painful hypersensitivity even to light touch. These are experienced in a variety of locations, quite symetrically, including scalp, legs, feet, torso and buttocks. on buttocks is sufficient to make sitting for any period of time. Have had to take 10mths off work and move back to parents house becoming effectively housebound.
I am 30 yo and have type 1 diabetes since 18yo. Diabetes is highly brittle and bsl varies widely despite extreme care. MRI, nerve conduction, csf, eeg all normal.
Onset was over several months of continual worsening and changing ov precise symptoms. originally more back pain, difficulty holding any weight, other symptoms gradually became bigger problems.
Also suffered from severe muscle spasms, now reasonably well managed by meds. Also, several years ago had serious problem with stabbing pain on soles of feet- nerve conduction tests were normal, but problem fully resolved itself after approx 2 mths.
I'm having serious problems obtaining any diagnosis, and have clashing diagnosis from different doctors (ranging from 'cannot be diabetic neuropathy', 'is atypical diab neuropathy', 'psychosomatic', 'chronic pain syndrome').
This is having a devastating effect on my life and I welcome any further information, suggestions, possible diagnosis, or similar stories.