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atypical (diabetic) neuropathy?

Hi.
suffering from a range of painful neuropathic symptoms- pain, burning, stabbing, jabbing, painful hypersensitivity even to light touch.  These are experienced in a variety of locations, quite symetrically, including scalp, legs, feet, torso and buttocks. on buttocks is sufficient to make sitting for any period of time. Have had to take 10mths off work and move back to parents house becoming effectively housebound.

I am 30 yo and have type 1 diabetes since 18yo.  Diabetes is highly brittle and bsl varies widely despite extreme care.  MRI, nerve conduction, csf, eeg all normal.

Onset was over several months of continual worsening and changing ov precise symptoms.  originally more back pain, difficulty holding any weight, other symptoms gradually became bigger problems.

Also suffered from severe muscle spasms, now reasonably well managed by meds.  Also, several years ago had serious problem with stabbing pain on soles of feet- nerve conduction tests were normal, but problem fully resolved itself after approx 2 mths.

I'm having serious problems obtaining any diagnosis, and have clashing diagnosis from different doctors (ranging from 'cannot be diabetic neuropathy', 'is atypical diab neuropathy', 'psychosomatic', 'chronic pain syndrome').

This is having a devastating effect on my life and I welcome any further information, suggestions, possible diagnosis, or similar stories.

thanks
1 Responses
1478335 tn?1287374339
dear Mariana, you can ask Dr Bernstein your questions. Dr. Bernstein
F.A.C.E., F.A.C.N., C.W.S., FACCWS
Diagnosed in 1946, at the age of twelve, with type 1 diabetes
I have read his free book on little known and badly treated complications of diabetes.  His personal story is amazing. His methods are controversial. My doctor says with good control of blood sugars he does not see neuropathy which is what Dr B says too. I suggest you read Dr B's books and listen to his cd's (much of it is online for free - he is  very generous with information. he talks about neuropathy here http://www.diabetes911.net/readit/chapter23.shtml

"Dr. Bernstein will participate in another 60 minute Teleseminar and Webcast on Wednesday November 30th, 2010, at 7PM CST, 8PM EST, 6PM MST, 5PM PST, designed to answer your most important questions concerning diabetes and his thoughts on the latest developments in this area. The seminar is FREE but participation will be limited and you must register" at the website http://www.diabetes911.net/askdrb/index.php
Post your diabetes questions there.


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