First of all, keep in mind that I am unable to diagnose you because I am unable to examine you, this forum is for educational purposes.
The symptoms you describe are not specific for any single disorder, but there are several possibilities that should be investigated. Blurred vision, headpressure in ears/behind the eyes, and pulsatile tinnitus (hearing your heartbeat in your ears) is common with a syndrome called benign intracranial hypertension (BIH)(also know as pseudo-tumor cerebri). This condition often affects young females (ages 20-40), and is more prevelant in overwieght individuals(but not always). The spinal fluid is at increased pressure (from decreased resorption) and causes the symptoms. Diagnosis is made by lumbar puncture (spinal tap) to measure the spinal fluid pressure (typical BIH pressures will be 30-45mm H20)(normal pressure is 10-20mm H20). Some medications, such as diamox (acetozolamide) can also help reduce the pressure. You should definitely have an ophtalamological exam as soon as possible to evaluate if the increased pressure is affecting your vision. The increased spinal fluid pressure can cause papiledema (swelling of the optic disc) and visual field defects/blurry vision (which may be permanent if not addressed). An additional scan that probably was not done on your MRI is an MRV (magnetic resonance venogram), that is very important to evaluate this condition (blockage of cerebral veins can cause BIH). I would also send off the spinal fluid for inflammation (tourtelotte panel, oligoclonal bands) to evaluate for multiple sclerosis, Lyme disease antibodies/protiens, Epstein-Barr virus, cytomegalovirus to screen for other conditions that are possible as well. You should also have an MRA (magnetic resonance angiogram) if you have not had one yet. Vascular malformations such as AVMs, glomus tumors, etc can also cause your symptoms.
To summarize I would recommend a lumbar puncture to evaluate for BIH/ chronic infections and an MRA/MRV.
I hope this has been helpful.
I forgot to say that the crick is on the side I sleep went to Chiropractor and he said I have some degeneration in neck and that it is out of align went to him for awhile and did not get any better. So I don't think that this might have anything to do with symptoms not sure.
I am sorry I keep forgeting things until after I post comment. I also had a severe headache on left side of head a few weeks ago that is the first time that has ever happened I have had headaches before but I thought I was going to die that is how bad it hurt. I took aspirin and used ice and it went away. It has not happened since then but I do get a dull ache on that side of my head. I just thought that I should mention that. I keep hearing people talk about lyme disease on these forums but I have never been bit by a tic. Some of the people though seem to have some of the same symptoms so I don't know. I will not post anything else I think I have covered everthing. I am just very frustrated. I want to feel good again. Thanks
I have had same problems for over a year now. Started with back pain, headaches, muscular skeletal pain, doctor diagnosed me with chronic fatigue syndrome. I saw a neurologist a few weeks ago and he has said compression of the spinal cord in the neck area. I am waiting to go for an mri scan asap. I also have floaters in both eyes, vibrating L shoulder and R foot and sciatica down the backs of my legs. I wake up some mornings and feel like I have a hangover.
Alot of your symptoms sound like migraine. Especially the one sided headaches. Migraines can also cause blurred vision, dizziness, pressure/fullness in ears/head and behind eyes, tinnitis, muscle weakness, a foggy brain, as well as an inability to concentrate. Maybe mention migraine to your doctor to see what he thinks. I sure hope you get better soon!
No it has not been mentioned, but I have seen alot about it on the forums. I have never been bitten by a tic.
Sorry for your problems.
I also have some weird symptoms and the doctors can't find out what is causing... I agree with ihatepvc (we have exchanged messages, haven't we), Lyme is a possibility. I got tested but still waiting to see a doctor that asks for more specific tests. The point is, keep looking and don't give up. My last neuro said to me to stop looking on the internet, but if we don't care for our health who will??
Yes, compression on the spinal cord can cause some of your symptoms, but our nervous system don't goes "backwards", so if you have a problem on you neck, it's not going to affect you vision.
Is it only me or seems that there is something out there that is causing A LOT of neuro problems and the doctors don't know what it is (maybe Lyme??)??
Every new doctor I go says something different, and asks for different tests... (I know I'm just starting with my medical bills).
I hope that all of us get an answer for what is causing our suffering... I think it's easier to fight against something you know, instead fighting against a ghost...
Best wishes !:)
Dear jen75, I appreciate your message. I am sorry you are going through all of this. Maybe with all of us supporting each other we can help figure out what is wrong. I wonder how long it takes usually for one of the neuro's on this sight to give some ideas probably a day or 2 don't know but I am curious as to what they will say about my question. Thanks, let meknow what happens with the mri.
Thanks for writing. So you are saying that a tic does not have to bite you for you to get lyme? Let me ask you to were or are you extra sensitive to noise at times like it is magnified 10 times over? Please write back.
Yes, I am oversenstive to noise, but not light. A slamming car door will scare the hell out of me. Before I became sick I was very healthy. I have a degree in Nutritional Science and I was jogging 15 miles a week and at the gym 5 times a week. I was in top physical shape, right now I feel like an old man and Im only 35 years old.
I know what you mean about feeling old. I am 35yr old female with a wonderful husband and 9yr old daughter and sometimes I feel like people think I am crazy but oh well what can you say. You are the only one that knows how you feel inside. I have a very supportive husband so that is a blessing and I know he just wants the doctors to find out what is going on and help me get better. I will ask the doctor to do a lyme test. I am surprised that the new doc did not even mention lyme as a possible problem. Do you know if you can have an elevated CRP with lyme or a positive AMA? Thanks and I hope you get better very soon. I will be praying for you and I know that God can heal!!!!!!!!
Thanks for your message. I sure hope you find out what is going on with you. Please let me know what you find out. God Bless
I have all the same symptoms for over 1 1/2 years now. I got tested for Lyme disease 2 months ago from Igenex and the test came back positive. I went to see a lyme literate dr and he put me on Antibiotics right away. Its been 6 weeks now, the first 5 weeks were hell, but I think I am now starting to feel better. I can now function normally and go about my daily routines. It was so bad I was bedridden and drs would not put me on disability because all my labs and MRI's and spinal fluid tests were normal. The lyme dr told me in 6 months I should feel about 50% better. In the mean time Im going to try and return to work and hope for the best. By the way, I live in East Los Angeles where there is very little evidence of Lyme disease. All it takes is one little bug that picked up the bacteria from a rodent to bite you and inject the bacteria into your blood. A good refrence website is WWW.Canlyme.com
There is a Lyme disease support meeting at Whittier Presbyterian Hospital, Calif. Sept 9th at 1:00pm in Room F.
I wish us all good luck and may God Bless.....
I completely understand your frustration with dr's. My husband went thru something similar. His primary care just didn't seem to care. When he would go to a specialist they would at least take him serious and do as much as they could but when they couldn't find the cause of his symptoms....mainly gastrointestinal...it was back to the primary dr. I finally got so fed up with months of this and his "you have to find the disease before you can treat the disease and some times you DONT find it" roller coaster. I demanded a pet scan. They all suspected a cancer but couldn't locate on. I told them to order the test and let it locate it if it is there. IT WAS THERE and it is in his brain. He will have his first appt with a neurosurgeon on Thursday where we will get the "diagnosis" officially... BRAIN TUMOR! We know it is in his pineal gland and that it is rare. Also possible that he has sinus cancer too which is rare.
Not telling this story to scare anyone. We know when something is not right. Insist they keep looking until the cause is found. If your not one to speak up for your self, as in my husbands case, take someone who will. His is a story of wasted months of searching. In the dr's defense I do have to say he didn't have most of the brain tumor symptom. My husband is only 42.
Had you taken any fluoroquinolone antibiotics (such as Cipro, Levaquin, Tequin, Avelox or Floxin) at any time prior to your symptoms first appearing? These drugs could be a possible explanation to over 90% of the symptoms people have mentioned in this thread (and many other threads on this site, actually). Side effects from fluoroquinolones can appear for months after a person has stopped taking them, which can make the connection of the symptoms to the cause difficult at times. These adverse reactions can also persist for years or even be permanent depending on the individual.
Lyme tests can be very tricky. You have to find the right lab to run the test. Kaiser usually uses Quest labs to perform their Lyme testing, not good. I know this from personal experience and directly being shown by the lab manager at Kaiser. They dont test for two all important bands 31 and 34KDa. These 2 bands were originally omitted because they would come out postive if you ever received the Lyme vaccine back in the 90's. The Lyme vaccine was discontinued in 1998. The CDC never reinstituted those 2 bands as part of lyme testing due to the fact that if you had received the lyme vaccine you would test positive. Bands 31 amd 34kda test specifically for the outer surface proteins of the lyme bacteria. I did all my research in trying to find out the cause of my illness and it helped that I have a medical background. By the way, I did test postive on those 2 bands and a couple others. Here is where to start....Call Igenex(.com) lab and ask for a free blood testing kit. Then take the kit to your Dr. and tell him you want to send a blood sample to this specialty lab for lyme testing. The Dr. has to write a prescription for it. It costs around $390, but it is better to know that you either have it and begin treatment or you dont and move on to try and find something else. I tested negative on 4 seperate lyme tests at Kaiser, only to find out I was Lyme positive from Igenex. I am all out to try and help people that are suffering what I have/am going through. I wouldnt wish this on anyone....
I have had a lot of the same symptoms lately. Do you ever grind your teeth? My doctor, dentist and chiro think it is TMJ. Have you any problems with your jaw or teeth?
I do have TMJ and have had it for about 16yrs so I know for a fact that is not it. I hope you get better soon.
Hi everyone! I have been reading your comments and I understand what each of you are going though. I pray that we all will find answers and treatments for our medical problems and get on with our lives. I am also at my wits end and don't know what else to do. Initially, I thought my problem was dental related. I am experiencing excruciating throbbing, stabbing, electric shock-like pain that originates in my lower right gum, in the area of my 3rd molar (wisdom tooth). The pain travels up the right side of my face and head, causing facial spasms, burning sensation, tearing and twitching of my right eye, blurred vision and headaches. At first I thought the pain was in my tooth. The pain is not provoked by anything in particular. It happens when I am doing nothing, talking, putting food in my mouth, chewing, brushing my teeth, drinking water or any beverage, washing or touching my lips or face or just licking my lips. The problem has persisted for approximately 5 years and have become increasingly more severe. I have visited several dentist, dental hygienist, endodontist, orthodontist and maxillofacial surgeon. I have had fillings replaced, 2 root canals,treated with pain medications and antibiotics and finally, in desperation, 3 extractions (1st, 2nd and 3 molars on lower right side). I had planned to replace them with dental implants. The last sugery was performed almost a year to date and I am in more pain than ever! Now, the Maxillofacial Surgeon think it might be TMJ since I was previously treated for the problem as an adult and wore braces for over 2 1/2 years. He referred me to an Orthodontist for evaluation and treatment and braces were recommended. I'm thinking,,,,how can I withstand ortho treatment and dental implants when I am in so much pain! I reguested and MRI ( I had to request it myself) and the results was negative for TMJ. Now, I am truely frustrated and confused about the diagnosis. In my research, I found a condition called Trigeminal Neuralgia. I am apprehensive about what I am finding and want to know if any of you are familiar with this condition? I am now searching for a Neurologist. I am an active, healthy, 55 year young female. I am self-employed, unable to work most days and my quality of life is greatly affected. I am anxiously waiting to hear from anyone who can help. Be Blessed.
You are so right. I never even thought about having lyme until I got on this sight so I don't know. Do you have lyme? What is so bad nothing I am having done the insurance I had would even cover now they have terminated my insurance. I am a lost because I cannot afford to keep running up doctor bills to find out what is wrong with me. What is your story? Thanks for writing me.
Thanks so much for writing back. I hope you are doing well. I am going to see about seeing a neurologist as soon as possible.
Does anyone know if psuedo tumor cerebri can cause a positive ANA?
I came across this site as I have the exact same symptoms as some of you have described. I have been asked to go for an ENG exam by my ENT specialist. He suspects it is a viral infection of the innere ear. I don't feel the stuff around me spinning but it is a general feeling of loss of balance, blurriness in both my eyes ( I am a technology worker so I stare at a cpmputer monitor about 10 hours a day). do not wear glasses. I am in my early 40's.feel as if I have had 3 shots of whisky at any given time ( no fun as I would rather enjoy the drink prior to feeling drunk ;-)).
Are you guys seeing any improvement? I have been like this for the past 4 months or so. My Primary care Dr. laughs at me so I went directly to the ENT who is a little more compassionate.
Some times I feel if I faint and actually pass out it may be better as someone will take me to the hospital to run all the required tests, it is really frustrating.
Sorry it has taken me awhile to write back. I haven't been on here in a few days. I have finally been diagnosed with pseudotumor cerebri and I finally see a neurologists on Sep 14th. Keep searching do not give up to find out what is wrong with you. I had a doctor treat me that way a few months ago and if he would have taken me seriously, I likely would already be better. I hope everthing works out for you and you get the help you need to feel better. I know exactly how you feel. I will be praying for you that you get exactly what you need. Please let me know what you find out.