My sister is 29 years old and has a cavernous hemangioma in her brain stem. It seems to wax and wane in size. When it gets inflamed she has trouble walking, breathing, swallowing, her face droops, and she cannot focus. She has very bad headaches and has been put on medication for them that does not work. She has seen a neurosurgeon who says there is not a lot that they can do because of where it is at. Meanwhile, she is a single mother of three young children and has trouble even functioning sometimes. She has had several trips to the ER with admissions, but every time they tell her there is nothing they can do. Does anybody know if there is some kind of surgery that is safe to do in the area of the brain stem?