My Mother was diagnosed with Cerebellar Ataxia 4 years ago when she was 55. She started out with slightly slurred speech, she would fall a lot and she had dizziness but she could walk with a walker.
4 years later she's extremely limited and really struggles, she's in an electric wheelchair which she has a hard time steering, her speech is very hard to understand and her voice volume is very low, her legs tap uncontrollable, lots of tremors-she can't write or type, she has to scrunch her right eye to focus and read, she's incontinent and I think it's from the medicine for her incontinence (which doesn't help) but her legs and feet are very swollen and her mood is off as she's understandable depressed. She's been on Paxil for about 2 years but she doesn't like the way it makes her feel (out of it) except when she doesn't take her pill she just weeps non-stop. The worst part is she chocks a lot-especially when she eats or drinks but sometimes for no reason at all. I'm worried about what the future holds and I'd like to know if there's anything out there that she can try to make her more comfortable and if you can recommend some reading material for me to get more information on Cerebellar Ataxia, I know there are all different types her's seems to be from cerebellum degeneration-her cerebellum is shrinking with each cat Scan.
I appreicatte you taking the time to read this and hope to hear from you.