Where to begin? Aside from having a few migraines a month, I was very healthy (avid cyclist/marathon runner) up until a few years ago. At around the same time (2010?), I began to have partial complex seizures (regular EEG was ok, 48-hour EEG while on meds suggested seizures while I was sleeping) and my migraines increased to daily or near daily. The neurologist just passed this off as saying that people with migraines are high risk for seizures and prescribed Topamax (which did nothing but make me stupid).
In 2011, after having constant fatigue/depression, my b12 was determined to be critically low (I don't remember the exact value, but it was double, not triple digit). It was treated with injections/sublingual tablets and brought up into the 600s. My gp said that was enough to be stored in the liver for years and d/c'd the b-12. I stopped having seizures, but I was also switched to Zonergan (I attribute the b12 to stopping the seizures; my neuro says this is impossible and attributes it to the Zonergan, which I am still taking). My migraines improved for a time.
I started having daily migraines again this year, and began Botox treatment last month. It helped for a bit after a week or so (I had 6 days migraine-free), but I'm back to having daily migraines. I have a lot of weird visual disturbances/trouble with focusing my eyes, but I figure that's just migraine aura. I've also been feeling faint upon standing: I took my bp at the pharmacy yesterday and it was 85/50, pulse of 120. My gums are bleeding all the time. I'm always tired and can't wake up in the morning, but I'm also restless (especially my legs/feet) and have trouble sleeping. My muscles are really sore and painful, especially around my shoulders/neck (the Botox helped this some; the neuro said those muscles spasmed the entire time). I don't know if this is related, but I have chronic diarrhea again and frequent yeast infections.
I am almost afraid to go to the doctor because I feel like they think I'm a crazy person, but I cannot even function. I had to walk down 1 flight of stairs today and I thought I was going to die; this is pathetic for someone who is used to being pretty physically fit.
Anyway, I don't know if this is the correct forum; my gp suggested (a few years ago) that I could possibly have some sort of autoimmune disorder, but he's usually quick to just pass it all off to depression or stress.
Thanks in advance if you have any suggestions.