Hi, I have been experiencing what I would call chronic daily headache syndrome. Also, vertigo and delirious feelings are frequent (by delirious I mean sometimes i have trouble recognizing the details of people's faces..my mind is out of focus with my vision). Most days the pain is a 5 out of 10, but can range from 3 to 8, the most important factor is that the dull ache never ever goes away. I feel the pain deep around my sphenoid sinus, but also along my forehead and the top of my head, as well as the occipital region to a less degree.
1st scenario)I do have a 3.5 centimeter mass on the MRI and its thought to be possibly meningioma. It's located adjacent to and just above my right orbit, it is fully outside the brain, and as my doctor said "it doesn't even penetrate the dura". I've repeatedly questioned him about this because it's the only thing found in scans of my head and neck, but he said he thinks it "extremely unlikely" the cause of my pain. I do not really feel pain "localized" to the area of the meningioma UNTIL I lay down on my left side of my head and then often I DO feel pressure which is very localized to the area of the meningioma. I have also had an MRA which releaved no aneurysms or occlusions or stenosis. EEG report was normal, but there was abnormal activity in the specific area of the meningioma.
2nd scenario)Lets say this meningioma is not the cause. I would like to explore all possibilities of my type headache, at any cost, please give me a list of every test you would if i were your patient (at any cost!) 1 year misery no answer! thanks!