eagle syndrome symptoms?

[esya]

An ENT confirmed Eagle Syndrome, bilateral.  This was after excluding dental issue, eyestrain or problems, TMJ, stroke, etc (fI have a serious family history and PAD, personally).  The muscle relaxant my md gave me to try for a week last spring worked the best for the pain, but put me to sleep so I discontinued it.  

I went to a neurologist in August bec of 5 months of pain.  It is located in front of ears, behind jaws, radiating up to eyes and down to throat--adams apple and the back of my neck feels stiff.  I have since had periods of double vision, ears ringing or throbbing, and increasing difficulty swallowing.  I was missing several days of work at a time, he put me on the anti-seizure stuff they are using now which allows me to work but not effectively.  Took me off analgesics. It feels like I have the headache and sore throat of strep throat all the time, just less or more depending on the level of the Depakote.  My ENT doctor says he does not do or recommend the surgery for eagle syndrome; could my headaches be problems from a blood vessel growing into my ear or what?   I am deeply depressed due to the debillitation of my life from the pain.  Who should I go to for a second opinion?  What should I ask for? I do not have a history of depression before this condition.  I am 53 and female.

[DLDITTA]

crazy

[DLDITTA]

I have read more success rates in going thru your neck - when they go thru the throat it usual returns within one year

[DLDITTA]

Call UAMS in Little Rock or John Hopkins - they are specialist in this area.

[DLDITTA]

My husband has Eagle Syndrome and we are looking at different hospital surgeons now - can you send me the name of yours.  We go to UAMS next week then John Hopkins.  Trying to get the best surgeon we can.
My email is ***@****

[DLDITTA]

My husband has been diagnosed with Eagle Syndrome - we have an appt with UAMS in LIttle Rock - who did you see at John Hopkins I am overnighting my paperwork for him there today - I have read great things about them for this disease.  I am so glad to hear you are doing well.  If you get a chance please send your doctors name and keep me updated.  Prayers.  My email is ***@****

[DLDITTA]

I have found 3 places that specilize in Eage Syndrome - UAMS - Little Rock, UT of Dallas, and John Hopkins - do not go to an ENT to have surgery go to one of these specialist - I am sure there is others but I did extensive research and so did my local doctors - my husband is scheduled on September 16 at UAMS - I will keep you informed.