hydrochepalus

[kaylieghs1986]

hi my son was diagnosed with hydrocephalus when he was 5 weeks old and he is now 8 months old he has not got a shunt he has had a third vetricalostomy and my question is just recently he has stopped breathing when he is asleep and will let out a loud gasp and goes ridged for a second i am not sure how often this happens during the night as it does not wake him up, and i was just wondering if this could be related to the hydrocephalus or somthing different or if it is nothing to worry about as i find it hard to talk to his dr's i dont want them to think i am being parnoid! thankyou, kayliegh

[n40066]

please make an appt. with a pediatric neurologist as soon as you can.  i don't know if a sleep study can be done on a child so young, but i would certainly look into it!!!  do they know what caused the hydrocephalus? i would push for answers as to why your baby stops breathing.  hard!!!
elizabeth

[louis682]

my relative died depending on neurosurgeons and neurologists telling him his headhache was nothing serious until he had died....do not depend completely on a doctor or 2 when it comes to something critical affecting your child, have few different consultants from different parts see him and inform you of his wellbeing

[louis682]

hello you find any consultant specialists here....and as for dr's thinking your paranoya what do you care what the doctors think? A Mother worried for her child may God Bless you for that....as a father im going to be as paranoya as i can over my children because i love them....if the doctors your seeing are not supportive or helpful find another consultant in neurosurgery and neurology to make sure your child is fine...