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infant siezure
Hello,
I have a question about infants and siezure. My son roughly about 4.5 months old has several (7)myoclonic siezures. They last at the very most about 20 seconds, most were only 10 seconds. His siezures consist of rapid flicking of his tounge. And sometimes (not every siezure) very minimal movement of his mouth.
These siezures started on 9/22. The last siezure that he had was on 9/24 @ 12:00 pm. We immediatley visited our pediatrician and he recommended that we see a neurologist. Which we did. The neurologist strongly recommended that put him on trileptal 300mg (which my wife, to much of my dismay, did). Doesnt this dosage seem a bit much for such a young baby? He weighs just under 16 lbs. (15lb,15oz). I have read a lot about this drug and am VERY concerned. I read that this drug has a 23% discontinuation rate because of adverse side-effects, and that was in adults with the same dosage as my boy. In my mind this is an EXTREMELY high rate of discontinuation for ANY drug.
Now seeing that my son is otherwise perfectly healthy in every way, I am concerned that this drug might developmentally stunt him. Or give him learning disabilities that he would not have otherwise had. Also, I am concerned that this drug might actually make his siezures worse. Ive started giving him vitamins and it seems to have subsided the siezures somewhat.
Is there any other way, preferably not using psycho-tropics to help my son? Is there any proven homoeopathic or natural methods to help him?
Any insight would be VERY helpful and VERY much appreciated.
Thank you.
I have a question about infants and siezure. My son roughly about 4.5 months old has several (7)myoclonic siezures. They last at the very most about 20 seconds, most were only 10 seconds. His siezures consist of rapid flicking of his tounge. And sometimes (not every siezure) very minimal movement of his mouth.
These siezures started on 9/22. The last siezure that he had was on 9/24 @ 12:00 pm. We immediatley visited our pediatrician and he recommended that we see a neurologist. Which we did. The neurologist strongly recommended that put him on trileptal 300mg (which my wife, to much of my dismay, did). Doesnt this dosage seem a bit much for such a young baby? He weighs just under 16 lbs. (15lb,15oz). I have read a lot about this drug and am VERY concerned. I read that this drug has a 23% discontinuation rate because of adverse side-effects, and that was in adults with the same dosage as my boy. In my mind this is an EXTREMELY high rate of discontinuation for ANY drug.
Now seeing that my son is otherwise perfectly healthy in every way, I am concerned that this drug might developmentally stunt him. Or give him learning disabilities that he would not have otherwise had. Also, I am concerned that this drug might actually make his siezures worse. Ive started giving him vitamins and it seems to have subsided the siezures somewhat.
Is there any other way, preferably not using psycho-tropics to help my son? Is there any proven homoeopathic or natural methods to help him?
Any insight would be VERY helpful and VERY much appreciated.
Thank you.
Hi there,
I ran across your post and was hoping you may could help me ? My granddaughter is quote "perfectly healthy" and we noticed her having absense seizures - starring off and getting limp.. Well they of course put her on trileptal and she is only 6 months old. This is weighing so heavy on our hearts as she is such a happy baby. We are afraid that giving her this medication will alter her learning abilities. She doesnt like the medicine as it makes her tired and cranky. She is not her happy self... Can you tell me how the medication worked for you? I am praying that your son have had GREAT results and he is happy and healthy!
I ran across your post and was hoping you may could help me ? My granddaughter is quote "perfectly healthy" and we noticed her having absense seizures - starring off and getting limp.. Well they of course put her on trileptal and she is only 6 months old. This is weighing so heavy on our hearts as she is such a happy baby. We are afraid that giving her this medication will alter her learning abilities. She doesnt like the medicine as it makes her tired and cranky. She is not her happy self... Can you tell me how the medication worked for you? I am praying that your son have had GREAT results and he is happy and healthy!
I hope that your son is better now. It is so interesting to know that food can influence in seizures I did not know that. Where did you find that? if you have websites to share about this I will really appreciate it. Your son will be ok do not worry he is blessed to have you.
Thank you for the kind words Romina. I will pray that your daughter gets better.
As for my son, yesterday we went to get his 3 day EEG aparatus plugged to his head. What a nightmare. He doesnt seem to mind it as long as the tech isnt pushing on his head.
I'm still rather frustrated with the neurologist. It seems as though he's not looking into any possible causes. There were a lot of circumstantial things that happend that I believe could have caused his seizures.
1. He was constipated or withholding his stool for 3 days ( journals.cambridge.org/production/action/cjoGetFulltext?fulltextid=336106 )
2. My wife, who is exclusively breast feeding, had been drinking large amounts of coffee.
3. She had been giving my son water, which I believe, diluted his system and he wasnt getting enough vitamins/nutrients.
4.The night before the worst day, he was fed solid food. Iwas green beans, which people in my family are alergic to. He actually vomited.
Less than 15 hours after I gave him his first dropper full of vitamins, his seizures have stopped completely. At the time of his last seizure my wife gave him his first dosage of Trileptal. But from what I have read about it, is that it doesnt even do anything for 2 to 3 days.
When I mentioned those things to the neurologist, he completely discounted them. He said that he never heard of anyone having a seizure because of caffeine. Which is kind of strange, because when I looked up "foods that can cause seizures" caffeine was one of the first items on the list.
I'm a mechanic, so by nature, I look for the cause of the problems. I dont just treat the symptoms, as I feel this particular doctor is doing. I am very concerned for the well being of my son.
-GreaseMonkey.
As for my son, yesterday we went to get his 3 day EEG aparatus plugged to his head. What a nightmare. He doesnt seem to mind it as long as the tech isnt pushing on his head.
I'm still rather frustrated with the neurologist. It seems as though he's not looking into any possible causes. There were a lot of circumstantial things that happend that I believe could have caused his seizures.
1. He was constipated or withholding his stool for 3 days ( journals.cambridge.org/production/action/cjoGetFulltext?fulltextid=336106 )
2. My wife, who is exclusively breast feeding, had been drinking large amounts of coffee.
3. She had been giving my son water, which I believe, diluted his system and he wasnt getting enough vitamins/nutrients.
4.The night before the worst day, he was fed solid food. Iwas green beans, which people in my family are alergic to. He actually vomited.
Less than 15 hours after I gave him his first dropper full of vitamins, his seizures have stopped completely. At the time of his last seizure my wife gave him his first dosage of Trileptal. But from what I have read about it, is that it doesnt even do anything for 2 to 3 days.
When I mentioned those things to the neurologist, he completely discounted them. He said that he never heard of anyone having a seizure because of caffeine. Which is kind of strange, because when I looked up "foods that can cause seizures" caffeine was one of the first items on the list.
I'm a mechanic, so by nature, I look for the cause of the problems. I dont just treat the symptoms, as I feel this particular doctor is doing. I am very concerned for the well being of my son.
-GreaseMonkey.
Me daugther started to have fibrel seizures one year ago she is under keppra. Now she has another type of seizure called atopic seizures, she is under 2 medications now. "I think that your son needs the medication to control the seizures because without medication they can increase. I will keep you son in my prayers.
Also, is there anything I should ask my neurologist?
Btw, Im also taking him in to 2 other hosptials for a second and third opinion.
-P.
Btw, Im also taking him in to 2 other hosptials for a second and third opinion.
-P.
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