I am a 47 year old female. In 1988, I had an encapsulated neuroblastoma removed from the tail of my pancreas. I also had my spleen removed because the tumor had crushed it. I had 6 months of chemo, and 23 radiation treatments. At the time the tumor was found, there was also noted that there was a mass in the soft tissue of my right side. Two years ago, my feet started burning whenever I put closed shoes on. I went to my doctor, and he sent me to a neurologist. He sent me for 4 MRI and it was noted that the tumor in my right side had doubled in size since 1988. Because of my history, I was then sent to my Oncologist. He said that we need to find out what kind of tumor it was, but nobody in Martin County wanted to do the operation. I was sent to Jackson Memorial, and the tumor was removed. It was a Schwannoma that was wrapped around my S-1 nerve. It came off without damage to the nerve. However, this did not stop my pain.
For two years, I have not been able to wear shoes, and if I take a bath or shower in warm water, I am miserable. Besides the buring, sometimes it feels like someone has crushed all the bones in front of my feet. My family doctor put me on tegratol, but I could not function on that medication. She has me on 10 mg of Prednisone, and I have been taking Darvocet for two years. I was only taking 50mg of Darvocet in the morning, and 50mg of Darvocet
but I was never out of pain, it just kept it under control as long as I didn't do much of anything. She also started me on Prozac, and the Prozac has kept me from killing myself. When I go to bed at night, the pain is unbearable. Two years ago, I saw so many doctors, that for the last two years, I haven't done anything about the pain. It is getting to the point that I don't have a life. By researching the internet, the two condition that stand out to me are Erythromelalgia, and Neurofibromatosis. I have always had moles, and skin tags, but in the last year, I have gotten a bunch of little brown spots on my neck, arms, and upper body. I also have a large brown patch growing in front of my right ear. My mother died last December, and her major complaint was burning feet, but her death was "undetermined". My doctor has suggested that I got to Mayo Clinic, or Cleveland Clinic. I am so tired of going to the doctor, and not finding out what is wrong with me. Any suggestions?