I too have paresthesia all over my body for 6i yrs. now. The Neurologist at Mayo Clinic did numerous test, spinal tap etc. and said that I have Immune mediated peripheral small fiber sensory neuropathy. I was on numerous medications and nothing helps me. I get cold sensations mostly, not warmth. Mostly in face 24/7 and legs. It drives me crazy. Mine started in my face first after a bout with the flu. Hope things work out for you. Mention this to your doctor. At Mayo they have special sensory labs there. I live in Wisconsin and I don't think any facility does here, so you may want to ask your Neurologist , as I don't know where you live- if there is a place that has sensory testing. An EMG will NOT tell you if you have a small fiber sensory neuropathy. Take care Laaz
Thanks for your input, Laaz. I live in PA and will have to see what testing facilities are available here. So, you have parethesias in your torso as well as your arms, legs, and face? I was thinking mine wasn't a peripheral nerve issue, since it's literally all over -- back, hips, chest, scalp, etc., as well as limbs and face. For instance, I just walked to work carrying a backpack, and now my back is all prickly.
I hope you find some treatment that helps. My sensations are mild enough that I think I could learn largely to ignore them. (If it's a progressive condition, that's something else). In contrast, your situation sounds really difficult.
Some additional info:
My magnesium levels have also tested normal since my symptoms began.
Over the last few days, I've begun to have some very mild dizziness.
I agree with the poster above. You describe small fiber neuropathy to a T. It is a tough diagnosis to get because many docs, including neurologists, have never heard of it. Do lots of research. Contrary to what many docs believe, small fiber neuropathy does not always start at the feet and may be patch or diffuse.
Also, small fiber neuropathy causes dizziness due to autonomic neuropathy. I have this problem and it is the WORST symptom I have ever experienced in my life. There are not many sympoms wost than not getting enough blood and oxygen to your brain, which is what is causing the dizziness in autonomic neuropathy. Please be very careful driving, as it is possible to pass out.
I have the same symptoms, and have found no relief, and no help from doctors. However, mine is seasonal. I'm fine all summer, but as soon as cold weather comes and I turn on the heat (heat pump), I start getting the symptoms. It seems to me that I'm allergic to something, but I don't know what! When the air conditioning is on (uses same vents, etc.), I'm fine. I've talked to heating/airconditioning people, but they don't have anything to offer. Sometimes the paresthesia is light enough that it's tolerable, but when it gets really cold and the heat stays on, it gets very uncomfortable. So frustrating! Some research shows that paresthesia can be related to heavy metals.