Hello.
Please do not be discouraged by the turn of events. This is the time you should be form and fight it off. Mind matters. Whatsoever you think has a great bearing on what happens and how our body reacts. So, you have no choice but to think positively. It's a very good thing that your husband understands and is with you.
You don't need to explain to your family until you get to the root of this.
I would recommend that you should discuss with your new Neurologist. What medicine has she started for the pseudobulbar palsy ?
regard s
I have been having test for 1 1/2 years. The Docs have ruled out anything curable, genetic and heavy metal poisoning. They have also ruled out dystonia and ALS. I was referred to a new neurologist and she said that I have the 'symotoms' of pseudo palsy, that the source of it has not been confirmed, the are going to do another EMS to try to pin point the source as well as retest for ALS.
This started in early 05 with dry mouth and burning tougne, Nov 06 my voice was effected (vioce box is fine)and the tougne has tingling spots. I choke easily on both food and liquids as well as on my thick syliva.
My limbs are fine, I have no parkinson symtoms and I am still working 6 hr 4 days a week.
I know that I am not going to get better, I trust my doctors but I am looking for a way to explain to my family. My husband is with me through this and attends my appointments with me but my grown children are have a problem understanding what is happening to me.
Maxthe Million
Hello.
If you are talking about the Pseudobulbar Palsy, it is a dysfunction of the cranial nerves ( 9th, 10th, 11th and the 12th nerves). It is usually caused by lesions in the cortico-bulbar pathway.
It can be caused by vascular deficits, inflammatory diseases like MS and motor neuron degeneration, such as ALS.
Do you have any symptoms ?
Regards