Hi...I am sorry to hear ur DD is still having issues after her PFD....I just had mine in May of this yr.
Does she also have a syrinx?....bcuz depending on where it is , mayb that is causing the issues.
We do have a chiari malformation and syringomyelia forum here on MedHelp......I invite u to join us.
My daughters spine is in excellent shape. This was quoted by the neurosurgeon who looked at her MRI prior to surgery. We had an MRI done last November and I sent a cd I purchased from the hospital, of the before and after surgery. The good news is the tonsil part of brain that protruded down below normal limits has went back up within normal limits. They said that internally it looks just like it should after a chiari surgery. So why the pain? They said that we are neurology and we dont deal with muscle. So now we are dealing with what the surgery did to her neck. Cutting through those muscles created a new problem. She had a really bad chiari. She experienced horrible headaches at 12 years old. Its a muscle issue now.
I am sorry to hear that, but am glad u joined the chiari forum.
Just having my surgery in May, I wonder about issues like this affecting me.....I also wonder if PT will help even tho ur DD already has a problem...children have a better time bouncing back from stuff like this.
I pray she will get better soon