What could be the name of the syndrome experienced
by many women who have posted here?
There must be a connection between giving birth and
neurological complaints that do not fit other
My daughter is three months postpartum with numbness
and weakness in her arms and legs, fatigue, and visual
disturbances. Her MRI (done when the baby was 3 months) is perfectly normal.
Her baby weighed 10 pounds at birth. She had an epidural during her delivery. When the baby was 2 months old she had an IUD inserted. Four days after the IUD was put in the symptoms appeared.
There has got to be some connection. There have been almost
no studies of postpartum neurological syndromes.
thanks for answering
this is my daughter's second child
she had an epidural
she lives in france
i live in pitman, southern new jersey
since she had a perfectly clean mri,
they keep telling her not to worry, but
I know what you are experiencing and yes, it is hard to sit back and watch this blatantly obvious disorder remove the joy one is supposed to feel postpartum. It is real... and we know it is because we "see" them struggling. We "hear" them complain... and try to explain to the professionals exactly what the symptoms are.
I did a reply to Samije not long ago discussing this subject because I firmly believe that the epidural occupies the captain's chair.
MethylB12 deficiency can cause post partum depression and psychosis. 1+ mg /day will usually correct the depression within a few days and in my non-postpartum depression of a LIFETIME, in 15 minutes. A high potency Bcomplex, 2mg folic acid and a multivitamin and mineral as well as there can be other contributing nutritional factors.
A small group of 4 hypersensitives, sensitive to inter and intra day methylB12 changes find that not all brands are created equal. We have found that Enzymatic Therapy Bioactive B12 worked immediately and maintained for 2 weeks or longer for all 4. So far two testers have found that Jarrow methyl b12 works immediately. One other brand worked immediately for 1 of 4 and none of 4 for 2 weeks. Good luck with your daughter. My mother suffered post partum depression that never went away and deepened into psychosis and spent a lot of years hospitalized.
Thanks for the advice, but we arn`t psychotic. I`ve took every vitamin you can think of, including B-12, and had every blood test run, including toxicity tests, and they`re all normal. This is something physical. I was find till I took that stupid epidural! Thanks for trying to help though. Are you male or female?? If you`re male, then you`ve never had a baby, and wouldn`t understand....
I didn't know that being from NJ, even the northern part could trigger a problem.
I am male so I can't possible have any direct experience. My mother however had postpartum depression that never cleared, going into fullblown depressive psychosis some years later and spending the better part of 7 years in a psyc hospital. I do know from experience that stressors of various kinds can trigger all sorts of apparently unrelated items. Best of luck in finding what can heal your problem, whether or not you actually find a source. The only reason I said anything at all is your symtoms make a good match, whatever the immediate cause was.
god bless everyone for trying to help
i did have my daughter get a b 12
shot in new jersey
before she left for france
she will see her french neurologist
thanks for your thoughts and prayers
i will be in touch
today is monday 8/11/03
Thanks for your reply. No, I`m afraid none of my doctors could help much more. The neurologist just wants to see me on a checkup basis. I am gonna demand brain MRI`s every other year, and other tests, and that`s all that I feel that I can do now. What about you? Was this your first child, how much did he or she weigh? This was my first child. She weighed 9 pds 7 oz. I have spoken to several other ladies, who have complained of the same symptoms.... some took Group B strep meds, some didn`t. some took the epidural, some didn`t. I just can`t seem to really put my finger on how all of this ties in together, but some how it does. When did your symptoms start? How long did they last? Thanks for your reply & time....
I have read many of your past posts as Andreas_mommy, and a lot of my symptoms were the same as yours. 6 months after having my son (my first baby), I started having numbness and tingling in my right arm and hand, and well as my right thigh. I also had intermittent eye pain in my left eye. All my bloodwork came back normal. My MRI of head, neck, and spine all came back normal (except for a little arthritis in my spine). I had an EMG and that was normal. I saw an opthalmologist and that also was normal. Most of my symptoms have now gone away, but I still have a little tingling at the top of my spine that radiates a little to the left. My neurologist says there is nothing more he can do, and if I still have symptoms in a year to come back.
I did not have an epidural. I did have antibiotics for Group B strep given through an IV in my arm, but nothing in my spine.
Did any of your doctors have any other suggestions of possibly other types of doctors to see?
This is very frustrating. I would like to have another baby, but am afraid all of these symptoms will come back. Did any of your doctors say anything to you about having other kids?
I had my son in September. He is my first child. He was 8 pounds 5 oz. My symptoms started 6 months later in March. The major symptoms lasted about a month. I still have minor symptoms like a tingling at the top of my spine that I also feel a little to the left of the top of my spine. It comes and goes.
In January I was diagnosed with hypothyroidism, and my doctor told me it was brought on by pregnancy/childbirth. Since pregnancy caused the hypothyroidism, it makes me wonder if pregnancy/childbirth alone caused these neurological symptoms as well. How long did your symptoms last? How often does your neurologist want to see you? Mine said to come back next year. Have you had any new symptoms?
My symptoms started in Aug. 02. Most have faded, but I still twitch all over, and have mild tingling in my right wrist. I also have some eye pain, but I`m beginning to think it may be sinus related, do to congestion during the pain. I haven`t seen the neurologist since May, but plan to see him in early Sept. He said he may perform a 2nd nerve conduction test, if I am still having symptoms, since my first one was "essentially" normal, whatever they meant by that.
Yes we all seem to have the same symptoms including this ladies daughter. Well where do we go from here we have all had a million dollars worth of test and still nothing. I along with you experienced my symptoms postpartum about 3 months after having my 3rd child, had epidural, and group B meds as well. My symptoms over the last 2 months have dramatically decreased however I still get the burning sensations on the back of my scalp, and extremeties at times. And I still get muscle twitching every once and a while. I am now looking at web sites to find an answer, is it a bad batch of group B meds, epidural meds, new material used in tubing lines, something. When I have found anything I will share with all.
I think this is an important thread on this forum
I especially think that this neurological cluster
of symptoms that exists postpartum seems to be
so hard to diagnose and treat. It exists and we
all need to band together to help each other.
Thanks for everyone's support.
I hope this thread continues
I wish I felt that more doctors were aware of this
I just noticed that these threads are modified
certain entries are deleted
this makes me wonder if "our" syndrome
is vastly reported all over the place
I realize that there have to be deletions
and that is fine, but I am wondering
if this is just a tip of an iceberg
I was also beginning to wonder if it was hormonal. I read
an interesting article about how birth control pills mimic
pregnancy, and how a woman's body responds/reacts
differently after going off the pill. Since the pill mimics
pregnancy, and your body reacts differently after going off
it, it made me begin to wonder if the hormonal changes
after pregnancy caused these symptoms to occur in the first
place. I was considering going back on the pill to see
if there was any difference in my symptoms. Were you on the pill before becoming pregnant, or are you on the pill now? I was on the pill for years. I went off it a few months before
I became pregnant. I am still breastfeeding, so I haven't had
a menstrual cycle since I had the baby. I plan on stopping
breastfeeding in about a month, so it will be interesting
after that to see if my symptoms get worse around my menstrual
cycle once I start getting it again.
Hi -- I seem to fall into the same category as many others on this thread. I am a 33 yr old mother of a two and a half year old daughter. Immediately after her birth, I had a numb spot on my left shin. OB and Neuro. said I pinched a nerve in my pelvis during delivery. Numbness faded after a few months. Now, two years later, I have stiffness and weakness in my hands. My hands seem to collapse into fists (esp when I wake up) I have a numb spot on my right foot above the toes, a loose feeling in most joints, heaviness of limbs. And now, most disturbingly, twitching and pulsing all over, plus travelling prickly/itchiness. I had a normal MRI (one month ago) of my brain and upper spine. I know 10 percent of MS cases can start with a normal MRI. I'm very worried and want to know what (if anything) else I might have. Has anyone else had a definite diagnosis or any convincing reassurances?
I didn`t take birth control pills before pregnancy. I started taking them about a month and a half after my daughter was born, and the symptoms had already began. Stopping the pill do to high blood pressure, didn`t really effect the symptoms....
My symptoms are worse during my period too. I really think this is hormonal more than something like MS. As far as I know MS doesn`t really have anything to do w/ effecting your menstrual cycle right??? Claire, did you have an epidural or Group B Strep meds during delivery? I had both, and several other women I`ve emailed on here have also, and are experiencing these same things as us.
I`m not really sure... I do think that it`s possible though. When did you give birth? How long after birth did your symptoms start? Mine started 2 or 3 weeks after the baby was born. I had an epidural that was placed 2 or 3 times, I can`t hardly remember now, and Group B Strep meds. I also lost a lot of blood after the birth and was given an episiotomy during labor. My symptoms have almost completely went away now. But they act up during my period for some reason.... You say yours are worse during that time too? What are your symptoms like during this?
It seems to me that there is some sort of "thing" that happens to a women's body in delivering a baby. I've had 2 beautiful, healthy and hopefully happly kids without epidurals and I still have experienced symptoms that mimic MS but, I don't have MS. Puzzling isn't it. I am frustrated that no one, especially not the Dr.'s know what is going on. After 3 MRI's the Dr. couldn't tell me anything new and didn't really offer me any solution. I know that there are women who have experiences the same thing, but what should I do now? If I had the name of what I am up against I would have some idea what to do. Please offer some suggestions. Does anyone have a solution? or recommendation?
Did you get these symptoms after the birth of your first
baby, or after the second? I got symptoms after having my
baby (my first) in September 2002. I would like to try to get
pregnant again, but am afraid since my symptoms haven't
led to any diagnosis yet. If you got the symptoms after your
first baby, did they get any better or worse while you were
pregnant the second time?
Hi Skate, Amymt, and everyone.... I know how you all feel. I had my baby in Aug. `02, and my symptoms are still here. As a matter of fact, I`m going to the neurologist today for a check up. I`ll let you know what he says.... I`d like another baby in the future too, but since I still have this with no diagnosis, it makes me nervous about another baby. I had an epidural and Group B Strep meds w/ the delivery. I had her vaginal, and lost a lot of blood after the birth. I began to have tingling, numbness, twitching, and vibrations under my skin about 2 or 3 weeks after her birth... I`ve had an MRI of the brain and neck, nerve conduction tests, evoked potentials measuring the path of the nerve from the foot to the brain, and blood tests, and they`ve all been normal. I`m at a loss.... I think this is hormonal or something. I was reading an article somewhere, and it said that women can experience stuff like this for years with no explanation. But it can often be linked to the baby taking a lot of the woman`s nutrition, causing the woman to be malnutritioned not even knowing it, and causing problems. But who knows really.... Good luck all......
I have a similar situation. I had my son a year ago. He was two months old when it began, I had a tingling sensation in my head that was on and off. Months later, I had a burning sensation in the back of my thigh. I have had muscle twitches and shaky hands. I went to a few docs including neurologist, eye doctor, internist. All normal results. The docs believe it is stress but it is odd that we all share the same experience. Where do we go from here?
I had to have the epidural placed twice too! The 1st one didn`t work on me either. So far, all I have done is run back and forth to doctors w/ no answers. I am being sent to a University hospital next. What about you? Would you like to email me? We could compare notes. My email is: ***@**** Tell me your story, I`d like to hear more about your situation and I`ll tell you mine... Thanks bye!
I had my daughter 14 months ago and my symptoms began when she was 6 months. leg pain, nubness, now I just experience twitching and a gurgling sensation almost like a gas sensation in the muscle. I had c-section and this is my first child. I too, would like to have another but am quite afraid of not knowing what my condition will result. I experience muscle twitching and almost like a gurgling sensation in the leg muscles. I haven't been to a neurologist yet but if this persists perhaps I should go. My doctor put me on Wellbutrin--antidepressents, I only used for 3 weeks and I didn't like the other side affects that went with it. According to him I am experiencing "stress and fatigue" I do notice it is worse around my period. I've decided that since it's only bothersome close to my time of the month that it's because I'm more stressed and fatigued. My doctor also recommended tonic water for this --I haven't tried yet but I'll try anything. I hope to post with good results in a few weeks.
I am so glad I found you guys! I had posted on the"symptoms still lingering" thread to TabA several times but missed this one. This is wherer I need to be I think. I am in the same boat as you all. I am 6mo PP with my second baby. My symptoms(tingling/vibrating in hands, from knees down, upper back and a sort of restless leg feeling at night) started about the time of my menstrual cycle resumed a month ago. My BP is an issue too but I think that is unrelated(on Toprol for that). I also had Broup B antibiotics - Clindamycin(Cleocin). Do any of you know what you were given. Penicillin, Amoxicillin, Keflex, are popular ones I think. I have had 2 vaginal deliveries without epidurals. I also had rough pregnancies with terrible nausea and vomiting (was on Zofran for that). Wondered if anyone else was really sick - could have a tie to the nutritional thing....? I have not been on the pill for years except the minipill after my first baby 2 years ago while nursing.
My family doc thought stress at first too and quizzed me about "anything under the surface" that was bothering me. I defiantly told him NO - just this tingling! He has now referred me to a neurologist so we will see what he says.(Dec 17) From what you have all shared I am not expecting answers but hopefully ruling some things out, somewhat anyway. I seem to have MS on the brain BAD. Being a nurse you know enough to freak yourself out but not enough to diagnose yourself either. I really wonder how much more of this is out there - it really is a fluke that I even found this site. Good luck to you all. I will be following your posts. ***@****
Hi, I haven't had the energy to read through your whole post ... but I wanted to ask if this is all still a problem and if it is, make sure she is tested for myasthenia gravis. While numbness isn't a typical symptom it IS not unheard of (especially in the MG we support groups, it seems to be a common complaint).
I walked into the hospital to have my first son perfectly healthy and walked out with Myasthenia Gravis. I was not diagnosed until my second son was 2 1/2 months old.
The major symptoms of MG are
difficulty with smiling, chewing and swallowing
shortness of breath,
weakness in arms and legs and sometimes neck (trunk weakness is possible but not common and usually not an early symptom ... it is normally one of the last symptoms to show up if it does show up).
The double vision is most often the first symptom, those that don't have double vision as first symptom typically will have mouth fatigue as their first symptom.
Myasthenia Gravis weakness gets worse with use of the muscles, better with rest. It gets worse around an illness, period or anthing that can cause a stress to the physical body.
One of the most common times for the onset of MG ... childbirth and or pregnancy. Flu and car accidents are the next leading triggers.
I am about nine years into my neurological problems. I just want to say that mine began when breastfeeding, when my daughter was 9 mos. old. She was born at home WITHOUT an epidural. I do not think the range of problems most of you are experiencing could be due to the epidural. My problems included visual disturbances, neuropathy (twitching, cramping, and parasthesias), fatigue, mouth sores, and migraines. I went to at least 20 different doctors, neuros, neuromuscular docs, oral pathologists, neuromuscular doctors, internists, Infectious disease, you name it I went! No one ever came up with anything definite to explain my symptoms. I had normal MRI and bloodwork repeatedly. I do know that at the time my symptoms surfaced, I was very very very overly tired (my daughter was a very difficult baby; but now she is "perfect" :-) I also had two boys 5 & 3 and was in school! I have a few theories: one, some sort of infectious disease (probably viral) that surfaced because my immune system was shot due to the stress & fatigue, two, an autoimmune syndrome as yet unnamed, three, perhaps Lyme Disease. I have read that sometimes autoimmune syndromes surface postpartum. Here's the good news: over the last 9 years I have slowly recovered to the point of being 80%, 80% of the time. This was done with vitamin supplementation esp. B complex, essential oils, acupuncture and chinese herbs, nutrition, and other alternative therapies. I also take .25 klonipin every night for deep sleep. There was a time I was on effexor, and that did really help the neuropathic symptoms. I truly feel for all the moms going through this now. I wish there was more I could do to help you, as I know firsthand how hellacious it is to feel bad with young children. God bless you all.
Can you tell me what kind of neurpathy you experienced? Was it variable or persistent in the places it affected?
I am having lower lip, cheekbone and left arm & hand paresthesias. The first thing, lower lip tingling, showed up when my son was 5 months old. He turns a year old this week, and I get an MRI and bloodwork done then, too. Jaw x-rays have been fine, but that's all I've had done so far.
My son is still nursing and obtaining at least 90% of his nourishment that way. I am wondering if the hormonal state of extended breastfeeding predisposes one to neurological problems because of the low estrogen levels. No one I've questioned so far can do anything but shrug.
And I have heard that several months after having a baby, the immune system almost overcompensates for the depressed immunity state of pregnancy. Perhaps at times it could overshoot the mark and attack the central and peripheral nervous systems through whatever mechanisms . . . just wondering.
Have you or has anyone heard about nursing or postpartum immune system changes possible factors?
Ive been searching for some similar, symptoms for some time,Im now 41 and live in Australia, my daughter is now 13, I have three children, my daughter being my last.
13 years ago my life changed, I had an epidural,when given I felt intense pain, I knew something was wrong , as Id had two before, with no problem,The doctors told me they had punctured a nerve, as I couldnt feel a part of my back around that area.
That was only the start of my nightmare, as the sensation started to come back and I could feel tingling, thats when everything else started, Ive had horrific symtoms,ones that come and go with no set pattern, they include,tightness in the left side of my face, a feeling like my brain is moving,feelings of my jaw is moving, tingling in my left arm,a feeling like my tounge is swollen, and so on , all tests are fine, blood and MRI, you name it, Ive had it,its easy for doctors to pass this off as stress,The only stress I have is knowing what they did and cant do a thing about it.
I feel for all you women out there, there is something wrong and it needs to be addressed....take care Michelle
Hi I`ve had neurological symptoms for 15 mos now, after having my baby. I had an epidural too. They had to place mine twice! It didn`t numb me that great, made me dizzy and I threw up and shook with it. It did relieve a lot of the pain, but it also scared me to get it. I had my daughter vaginally. The nurses and doctors kept moving me around like spaghetti. I think they caused some nerve damage. My symptoms also flare up around my period. I think hormones are related some how too. I`ve had a lot of tests, all normal so far. Well take care....
I too have had similiar symptoms. Mine started 2 months after the birth of my second child. I have tingling toes and back, twitching, shaky hands. I've also had a clean MRI of the brain, EMG/NCV, bloodwork for thyroid troubles and such. I am going to request a test for Lyme disease and a spinal MRI just to be sure. If anyone finds out anything more about this, please let me know.
Have any of you received meds for labor? I have had many symptoms described, starting about 8 years ago after my first was born.(vaginal birth,but with some meds. no epidural.) I have just had a fifth child-now 7mo.(tried the epidural)
Years ago I started feeling numbness and tingling on my left foot. It progressed to hand,arm,lip,cheek, and now eye. I also experience blurred vision in this eye off and on. Lately I have started stuttering, having memory loss, forgetttting words in the middle of sentences, and balance problems. I just had an MRI, and it was fine. I'm off to see the neurologist in Feb. He will probably say what he said three years ago. It is probably stress or painless migrains. My insurance is an HMO and I don't feel they are doing all they can.
Does anyone have any updates on their condition? Doctor comments ect...My symptons continue, tingling and twitches but I have so much anxiety about all this, I am not sure if that is causing all my symptoms now!!!
Hello all, been reading all your messages and my wife is having similar symptoms. She just had our son about 4 months ago. She had a brain and spine MRI and they had white abnormalities that are symptomatic of MS. She then did a spinal and it came back negative. But, we have read and been told by our neurologist that just because you get a negative MS test back it does not mean you do not have MS. This one is a tough bugger to diagnose. MS is obviously not something anyone wants but with the symptoms many of you are describing, they are definitely symptoms of MS. I have been told by a few folks too that some people have MS and none of their tests every come back positive. Here is a website with a message board that a MS expert will respond to questions. You might check it out, it has been very informative for my wife and I. I hope you all get better. :)
Does anyone have any updates on their condition? I still titch and tingle. I only tingle in the back of my thigh when I sit or bend. Does anyone have a similar experience? I am so stressed at this point, I wonder how much anxiety has to do with these weird symptoms.
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