In February 2013 i had mutiple (9) cyst growing on my brainstem had surgery later that month my neurosurgeon said he could get them all so we will just have to keep an eye on them. But when i came out of surgery i had facial paralysis and i am 6months out now and still have facial paralysis. Has anybody had this happen to them???
HI , I am 36 and I had a fenestration surgery last year in March ( 2009 ) for a cyst of 12 cm right side.( Canada-Montreal)
MRI done after surgery , after 5 months showed that the cyst was back, same size , now my symptoms are more accentuated as before, numbness on my lefts side , fatigue and sometimes feel like vomiting.
I am trying to have a normal life , I do not want to go trough any other surgeries. I have seen 10 doctors and no clear answer was received from any of them. I believe it all depende son our life style, nutrition and level of stress.
Thanks for the response. I don't know anybody who has had a cyst on the brain, and I got most of my info from the internet. Wish I would have found this forum before my surgery. Getting info from doctors is like pulling teeth. Now I guess I just wait and watch. Thanks
Thanks so much for the info.
Although a fenestration of the cyst is helpful, cysts can be congenital. My father had cysts on his arms and legs, brothers on chest and arms and oldest brother had one on his head. My sub-arachnoid cyst is in the posterior fossa of the brain.
Although we have all had cysts removed, (mine was fenestrated), they all grew back and has been a lifetime process for us, so in answer, that may be your case.
I get an MRI done once a year and several CT Scans throughout the year to monitor my cyst.
Hope this helps.
Hello Dear,
Sometimes after surgery, a portion of cyst may remain due to remodeling of the bone and chronic shoft of brain contents. Untreated, arachnoid cysts may cause permanent severe neurological damage due to the progressive expansion of the cysts or hemorrhage .With treatment most individuals with arachnoid cysts do well.
Drainage by needle aspiration or burr hole can be done. While these procedures are relatively simple, there is a high incidence of recurrence. In the past, doctors placed shunts in the cyst to drain its fluid. Now with microneurosurgical techniques and endoscopic tools that allow for minimally invasive surgery, more doctors are opting to surgically remove the membranes of the cyst or open the cyst so its fluid can drain into the cerebrospinal fluid and be absorbed.You should disuss the pros and cons of revision surgery with the neurosurgeon as the recurrence may still be there after the removal.
Refer Hello Dear,
Sometimes after surgery, a portion of cyst may remain due to remodeling of the bone and chronic shoft of brain contents. Untreated, arachnoid cysts may cause permanent severe neurological damage due to the progressive expansion of the cysts or hemorrhage .With treatment most individuals with arachnoid cysts do well.
Drainage by needle aspiration or burr hole can be done. While these procedures are relatively simple, there is a high incidence of recurrence. In the past, doctors placed shunts in the cyst to drain its fluid. Now with microneurosurgical techniques and endoscopic tools that allow for minimally invasive surgery, more doctors are opting to surgically remove the membranes of the cyst or open the cyst so its fluid can drain into the cerebrospinal fluid and be absorbed.
Refer http://www.skullbaseinstitute.com/arachnoid_cyst.htm
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