my 19 month old daugter has had siezures scince birth and now they are more often. she doesnt have them everyday but about every 6 weeks we end up in kosair hospital and there very hard to control she is on a pintobarbital drip 1.5 per kilo per hour she is 10 kg last know level was 9, and gets phenobarbital q12 levels been around 90-100, depakote q12 level unknown, calizapan q12, topamax q12, triliple q12, and started ketogenic diet, they have noticed a slight enlargement of left ventricle compared to first mri and ct she ever had done, but everytime they turn off drip after a few hours she starts having siezures she has had a lp done to check for infection but neg. fluid was clear and i think they said the pressure was 28 or 280 whichever one ,akes more sience to you. there thinking the water spots might be what causing this any ideals or suggustions i could ask our dr.? she also has hypertonia in upper body, duplicate chromosone 17p11,2 but me and mom was tested and she got it from mom could this mean anything as well because her mother has never had any problems? they are also talking about vns do you think that would benifit her?