I do not think that the lyme titre is significant and it certainly does not relate to your symptoms.
As regards the ear test the terminology is somwhat uncleart as you have quoted some abbreviations which are used by otologists as opposed to neurologists and may need to ask that specialist about the exact meaning. It would appear that the hearing loss is at least in part due to a conduction probem, that is it is related to the middle ear structures which conduct sound rather than nerve damage.
All pain is mediated by nerves, it can rarely be primarily due to a nerve problem, but in most cases it is due to nerves mediating the pain signals which are caused by another independent processs.
Obviously if you have all these symptoms there is SOMETHING wrong, but it would at least not appear to be a progressive or systemic process, nor is it related to a serious identifiable disease like a brain tumor, infection of inflammation.
I've had similar problems, but not as advanced as yours..
I've developed a burning in my arms and legs, which is not debilitating, but an awful nuisance. The doctor has no idea what is going on.
All tests seem to be ok.....
Anyone having anythoughts?
To NAL and DCTahan:
I've been through a very similar "thing." Do a search for my post of May 1, 1999 titled "Ongoing Bizarre Symptoms..."
It's a year later now and I'm 99.9% back to normal. Even with the multitude of specialists I consulted, a solid explaination was never offered other than post viral syndrome or Guillain Barre variant.
I had every test possible, all were negative. Indeed I was the picture of health. Eventually, testing turned up some thryoid abnormalities (acute silent viral thryoiditis) which simply verified that my entire nervous system suffered a viral attack. Incidentally, over the course of several months, even my thryoid returned to normal.
Trust me - in the absence of abnormal test results, there is nothing seriously wrong (I didn't believe this myself at the time I was so sick - but I believe it now) and you will eventually recover. It takes time and there's not much (in my experience) that can be done while your body heals itself.
A lot of people seem to have these symptoms
1996: just didn't have the same stamina
1998: very fatigued. Had to sleep now
1998 SEPT: muscles began tightening
1999 MAY: weak.....couldn't lift weights anymore. Muscle
tightening (causing patella tendonitis)
JULY: painless muscle spasms and heat sensations face also
AUG: muscle spasms almost like charlie horses, but not
quite, had to sit down nor fall down...couldn't be up
for more than 20 minutes. Tremors. Pain deep in my
muscles. Began taking B complex and symptoms
subsided slowly but never completely gone.
OCT: felt better so tried swimming...fatigue cumulative.
Muscles still very tight. Pain came back along with
pins and needles ....knives and daggers. At times
felt like someone was in there pinching muscles.
NOV: Began taking B12 shots (though B12 was low normal
Began dreaming immediately, pins and needles gone.
Muscles still tight. How long til I get better.
Still can't stretch or exercise. GOING NUTS!
Thanks for the information. Would a high b-12 test indicate anything? I know I should ask my doctors about this, but im to a point where I dont trust them anymore. Is there ANYTHING that I can do or even take that could help with any of my symptoms (such as the burning, twitching and tremors)? Thanks again
My symptoms have been very similar and have lasted about 3 years. After several neurologists I was finally diagnosed with a HYPEREXCITABLE PERIPHERAL NERVE DISORDER. Has anyone heard of this syndrome?? I would appreciate any information.