my name is jeff and i had a shunt put in for hydrocephalus when i was a newborn then had it rvised when i was four when i fell out of a trailer.Iam 42 now and my ventricals are swollen as well and i need a revision . My ventricles are pressing my brain tissue against my skull. Im kind of scared about having this surgery knowing I have a family now and my younger son is not here hes in texas. I hope it all goes well so I can see him again. Im also afraid I will not remember people when I wake up from surgery,
Does anybody know what happens in the brain after a vp shunt has been in there?
I had a vp shunt placed in 1998 for hydrocephalus due toaqauductal stenosis at the age of 48. After surgery I was diagnosed with Meniere's disease.
For the last few years I have had problems with double vision, balance problems, salty taste in mouth, no smell or taste (other then salt), dizziness, pain around the shunt side. I have been to the surgeon, a neurologist, ear nose and throat etc etc. MRI cat scan's are good. It has come to the point that I am written off as a mental patient because the dr's can;t find anything wrong with me. I keep on falling and feel like I am drunk al the time. The line in my neck "travels" and sometimes sticks out, my bowels are a mess. So does anyone have any information on scar tissue in the brain and what it can do???
My wife was having the same issues for months and finally they found the ventricals in her head to be swallon. She had to have her V.P. Shunt revised and now is doing really well. if you have any question please contact ***@****
Hi, I am a 28 year old female who had a VP shunt placed at 6 months of age. It went great, but for the last 5 years I have had horrible pain around my incision in my abdomen. No other problems. Went though CTs and Xrays, saw a neurosurgeon, general surgeon, and my regular doctor. The neurosurgeon said he would be more inclined to do surgery if he had done my 1 and only shunt revision when I was 13. The general surgeon said I should put ice on it. Basically, noone was alarmed, just adhesions. Too much scar tissue where the skin doesn't even lie correctly, as it is being pulled too much. I have been getting acupuncture for the pain for months and it is working. In the last 2 weeks, the pain came back and my acupuncturist wants to talk to my last surgeon and see my xrays and CTs. She will go into my abdominal scar area and break down the scar tissue, making sure not to hit the shunt itself. She can tell there is scars pulling and lots of inflammation in the area. She has gotten rid of much of the inflammation until this flare up. I am excited for the breakup of it, but scared at the same time!
I too got my shunt later in life, at age 17, and Im 42 now. I have been having this soreness around my shunt site on my head and my stomach has been upset....I also have a horrible taste in my mouth. I have an appt with my neurosurgeion next week so I'm curious to see what he says. I have had 2 children and had no issues with the shunt until now. I will keep you posted.
Robyn
Please inform us how your husband is doing. My son is 30, as an infant recieved a shunt and is now doing horrible.
We have a hundred disgnosis!! Looking for help!!
When we was hospitalized 2 weeks ago and given high doses of antibotics - that was the first time we saw him as his old self in 15 months. Now we are back where we started!
Help
concerned mom
make sure he gets a programmable shunt put in if they have to put in a shunt.
Another shunt is a last thing you have to do if nothing helps.
You have to visit a good neurologist/neurosurgeon and follow up the diagnosis as what is the reason of the present problem? If it is shunt related then go in that line of treatment whatever your neurosurgeon tells you.
Have patience and go for the best possible treatment for your husband.