Okay well I just read the part where your doctor won't entertain the idea of Trigeminal Neuralgia. There is one medication that will almost guarantee an answer of whether or not you have TN and can increase your chances of getting more pinpointed on the MS suspicion.
Carbamazepine is a well-known TN drug that reduces the pain(unfortunately it loses it's effectiveness through long-term use)BUT it is a great indicator of TN. If you go on this and show no signs of pain improvement then you probably don't have full on TN and therefore shouldn't move onward on a MS diagnosis, BUT if your pain decreases noticebly then you most likely have TN.
Well if you are suspecting MS, maybe throw the idea of the Interferon Beta 1-alpha to your doctor. It is self-injected medicine right in the muscle usually. You should check it out.
very cool article and MS is what I am suspecting but I cant even get this doctor entertain the idea of the trigeminal neuralgia even though I am now on seizure meds for it that are helping or the fact anther hospital said that's what it was. after almost 2 months of hounding this guy going over his head 5 times I finally got him to do something and all he did was summarize 3 years of medical reports and my visit with him into 4 pages and referred me to a ENT doctor or a psych and if that isn't it then go to mayo but he himself ordered zero tests.
all the things you mentioned I have no signs of any of that. with the steroids I am on my adrenal insufficiency is the only thing being handled correctly. but thank you.
The possibility of trigeminal neuralgia being caused by multiple sclerosis increases when it occurs in young adults. Great link to read...
Multiple Sclerosis Community Lies My Neuro Told Me or (Common MS Myths):
http://www.medhelp.org/posts/Multiple-Sclerosis/Lies-My-Neuro-Told-Me-or-Common-MS-Myths/show/1074879#post_9124258
Okay we are going to rule out everything possible. I am going to need you to answer all questions fully. Since you had adrenal insuffiency I may suspect Kidney related diseases. Tell me if you have one or more of the following signs:
- Low blood pressure that falls further when standing (orthostatic hypotension)
- Have darkening (hyperpigmentation) of the skin, including areas not exposed to the sun; characteristic sites are skin creases (e.g. of the hands), nipple, and the inside of the cheek (buccal mucosa); also, old scars may darken.
- Medical conditions, such as type I diabetes, thyroid disease (Hashimoto's thyroiditis and goiter), and vitiligo