My husband has had increasing fasciculations for a couple of years with no pronounced muscle weakness (which is a big relief as I understand that muscle weakness absolutely accompanies fasciculations associated with ALS).
However, his emg tests were considered "abnormal" and he has recent loss of strength when using his fingers. (It is subtle ... for example, he can't use finger nail clippers).
Needle EMG examinatioin shows fasciculatioins and chronic reinnervation in multiple muscles in the right arm and leg. Active denervation is observed in one distal arm muscle. As a result, the ALS neuologist is having him come for repeat testing every four months or so. We haven't yet had the opportunity to ask the neurlogist what he thinks this means. Can you offer any thoughts to this?
One other thing ... he has other rare but definite symtoms more related to the brain ... brief memory issues (once at night before sleeping he lost all recall of the day we had just lived, but was fiine in the morning ... the only thing he couldn't remember was that he forgot), a strange smell followed by a lightheaded "high" feeling in which his words are briefly garbled ... perhaps an overall change in judgement that only his spouse would notice. Could any of this be connected in any way? He also has loss of smell and big night sweats. He just had a sleep deprived eeg yesterday to see if there is any seizure activity.
Thank you for having this forum and thank you in advance for taking the time to answer. This is my first time on the site and the first time to ask a question. I misttakenly asked these questions in the wrong forum ... i'm looking for a neurologist's opinion! Thank you ...