Avatar universal

what's happening to me

Sorry this is long but I will give u the shorter verson

I too have this problem I black out I have had aura and have unusual spells of talking rubbish it makes sence to me but everyone else doesn't understand what I am saying.

Also had just one attack where I felt odd went dizzy lightheaded lost vision movement and speach.... I could shout for help but I could hear I had small rigety movements like jerking but that was the only time it happened.

Every blackout I have had I feel odd walk drunk get lightheaded loose vision speach and movement then after I come back around quickly and I'm fine.

Other symptoms drinking over 3 liters of fluids unless I get a bug then it reaches 6 - 8 litres of fluid a day the toilets is my best friend.

Also quezy stomach feel sick and vomit half of the time, shaky inside and shaky hand in spells, if I'm cold I'm bone chilled and shake with shivers, if I'm hot my skin is clamy and I swelter , migraine have been reduced .... Only because of mess but I still have a permanant headache that feels like pressure pushing on my head with sharp pains and throbbing on top of that palpatations irregular heart beat too fast and asthma I have confusion, disorientation blured vision on and off pins and needles in hands and feet and I wake up with no arms.... Can't feel them completely dead.

At the same time I keep getting trapped never in my back on the right hand side of spine. I already have a damaged coxic.
Oh and pains in ribs 3 or 4 years ago they said I have chostochondritis my ribs still stick out.
And I only have one kidney

I can't have beteablockers as it triggers an asthma attack which it did on wi 3 of taking them.

I seen a cardiologist had two visits other than a Hilton monitor did nothing he released me to a neurologist which I see tomorrow

my doctor thinks the blackouts are Syncopy and he also thinks I'm having seizures as one one of my attacks I couldn't write property couldn't hold the pen my head bowed forwards and left I had aura and few hours after it happened I looked at my notes ... It looked like a baby had written it.

My partner doesn't understand I've no one to talk to and I've been off work now for five weeks doctors orders ... Oh and they have told me no driving

I'm falling apart....... Help
Best Answer
875426 tn?1325528416
Well, hopefully, you have a glucose meter at home with test strips (or whatever) you can use to monitor your fasting blood sugar levels.  It's fairly easy to find normal values online for what a fasting blood sugar should be.  If they are abnormal, it's definitely something you want to bring up with your doctor.  Apples are supposed to be good for helping to control your blood sugar level I've read and cinnamon can have an affect too, so you might want to talk to your doctor to see if you should try both or either of these things to help if you have high blood sugar levels.

Getting a copy of your medical records is a great idea!  If you can organize them in a folder, they can be pretty easy to lay your hands on when you are planning to visit a doctor... you can have them at your fingertips anywhere you go.  You'll want to make sure if they look at them you get your copies back so you don't have to start over in getting more copies, which I imagine might cost some money?

If you don't have one already, please buy a blood pressure monitor from the store.  The instructions on them are quite simple and you can learn if you are having high blood pressure readings frequently or not at home that way.  Hypertension is definitely something to watch for if you have a lowered glomerular filtration rate (GFR) with your one kidney.  Also, if you do, avoiding NSAIDs such as ibuprofen I believe is generally advised too (have a sibling with two kidneys, but one is congenitally defective)- you probably already know that about NSAIDs.

There is a way you can do the "poor man's tilt table" test at home.  Use a blood pressure cuff that also takes your pulse.  Omron is generally a good brand if you can get one of those.  

Take your pulse or have someone do it that knows how- that's in case the monitor gets the pulse wrong (sometimes they seem better for the blood pressure than the pulse reading).  Lay down for about ten minutes.  Take your blood pressure and pulse with the monitor & then take your pulse in your wrist.  Then stand up.  Wait a full minute and take your pulse, etc. again.  If your pulse is more than 30 beats a minute faster standing than it is when you are lying down, you might even remain standing and take it again after you've been standing five minutes.  Record the numbers and show them to your doctor you and ask if you could be referred to an electrophysiologist for a REAL tilt table test.  Another test that might be done to confirm P.O.T.S. is a standing plasma norepinephrine test.

  If you learn you have any form of dysautonomia, including if you have P.O.T.S., as I do, feel free to join the dysautonomia forum here on medhelp and ask questions!  Here's a link:
http://www.medhelp.org/forums/Dysautonomia-Autonomic-Dysfunction/show/266  ;
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Avatar universal
Are you in the UK?  If you are....OMG, the medical care there is SLOW and mediocre.  

Not sure about the POTS too, but anything is possible at this point.  

I still believe this is DI or something Endo involving the kidney.  

Well...keep us posted.  

Helpful - 0
Avatar universal
Its ok don't worry.....
So far I have an app for neurophyiology in July
waiting on scan app and eeg
I said to my doc about the urine being sweet .... He did no urine test or asked me for a sample I am gona get a copy of my records as I might be able to find out the actual results of blood, thyroid ect ......
But so far to me anyway it could be a problem with my single kidney with hypertension and something else not sure what.....
One of my friends thinks pots??? With Di
I don't know but what I do know is they need to sort it out.

Thanks for helping you have all been great!

Oh and if I get to the point I will go a&e
Helpful - 0
875426 tn?1325528416
Oops- noticed I made a number of mistakes on my last post to you.  I meant:

"I'd probably BE going to get emergent care."
"...how THEY could help me get stabilized..."
"...see if I could get my appointments moved UP..."

Looks like I need to proofread before posting, expecially as  they don't have an edit feature on this site!  I'm sorry about the blunders.  
Helpful - 0
Avatar universal
Please keep us posted dear.  

I hope you get some answers soon.  
Helpful - 0
875426 tn?1325528416
You suggested in your opinion this was not anything for a neurologist to investigate, but ideally an endocrinologist instead. You also suggested she should ask for a brain MRI, and wondered about diabetes insipidus and  about a possible adrenal issue.  

With diabetes insipidus and adrenal issues both having to do with endocrine hormones which the master gland, the pituitary in the brain, has a direct bearing on, I wondered if you were thinking of the pituitary when you suggested the brain MRI.  Now I know your answer is no.  Hope this clears up your confusion as to what I was talking about with my question?
Helpful - 0
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