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why nobody answers our questions?

After, meds for a neuralgia in the mouth, i caught as a side effect tardive dyskinesia of the mouth and none of your bunch of doctors replyu that it seems like writing to a wall. What can help a tongue which moves all over or sticks out?
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Avatar universal
Hello - I have been taking trazadone 50 mg. at bedtime for 3 yrs. as a sleep aid for fibromalgia & anxiety. It terrifies me that it can cause TD or dystonia. I want to stop taking it, yet cannot take the z-drugs. Ambien & others wire me up & I can't sleep at all. Rozerem is more for getting to sleep. I need it to stay asleep too. 3 yrs. ago I was put on Ativan and became dependent on it. I was told Z-drugs wouldn't be a good choice for me, & that I can become dependent on them as well.
How risky is a low dose trazadone? I know you said that someone you were in contact with did get it from trazadone. My Dr. tried to reassure me that in 38 yrs. of practice she never saw anyone get TD from trazadone, & that 50 mg. is a low dose, but there is still a risk.
Any sugggestions? Thank you!
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585414 tn?1288941302
I actually provided information to that person and no one is being lied to. Any medication that causes tardive dyskinesia has it on the medication website and prescription labeling. I am now in a clinical study for having made a full recovery from schizoaffective disorder from glycine, an antipychotic in Phase II FDA study (for more information google "Dr. Javitt, glycine") and I am under clinical study for some of the lesser known variants of tardive dyskinesia (you can read my journal entries). Zofran has been helpful for me as has rhodiola and Clonidine in treating tardive dystonia.
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585414 tn?1288941302
You can read through my other posts. I have updated information in them. I do hope more neurologists such as the researcher I saw from Columbia University who did the presentation where I learned about it find out about rhodiola as a treatment for tardive dyskinesia and put it into practice. When you start on it post how you are doing. If it helps in letting people know that could make a difference in informing people as physicians haven't started to use it in clinical practice yet although some neurologists have. They need to see people recover without side effects or complications. Share your experience so we all can learn.
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Avatar universal
Oh, I forgot my e-mail
***@****
Verna 2
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Avatar universal
Please post all the meds that I cannot take at ***@****
Verna2
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Avatar universal
Please help us before we take a med that we cannot....Post it to ***@****
Verna2
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Avatar universal
Couldn't get into the website you gave me.
As it seems nobody wants to take resposibility for the complications these meds cause.
I wish upon the doctors the same hell, we, patients have to go throughso that they become more human...andstop enriching their pockets by prescriptions they give;
verna2
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Avatar universal
Thanks for answering; but not only those meds cause tardive dyskinesia: there is tramadol, redomex, trazadone, phenorbabital, valium, Plaquenil, tegetrol, and meds for menopause...
There is temegesic........

So, when, I need something for my menopause caused prematurely by anti-epileptics and all the rest:what on earth can I take?

And to help me sleep?

Verna2
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Avatar universal
Hello verna2

Tardive Dyskinesia is a neurological syndrome caused by the long-term use of neuroleptic drugs. Neuroleptic drugs are generally prescribed for psychiatric disorders, as well as for some gastrointestinal and neurological disorders.
Tardive Dyskinesia is also sometimes referred to as: Linguofacial Dyskinesia, Oral-facial Dyskinesia, TD, Tardive Dystonia and Tardive Oral Dyskinesia. Have you been on any of these medications? If yes, then any one of them could be the cause of tardive dyskinesia. I suggest you consult your neurogist to change the medication

Refer: http://www.schmidtandclark.com/Tardive-Dyskinesia/
• Abilify (aripiprazole)
• Clozaril (clozapine)
• Etrafon (perphenazine, amitriptyline)
• Geodon (ziprasidone)
• Haldol (haloperidol)
• Loxitane (loxapine)
• Mellaril (thioridazine)
• Moban (molindone)
• Navane (thiothixene)
• Orap (pimozide)
• Permitil and Prolixin (fluphenazine)
• Phenergan, Phenadoz, Promethegan (promethazine)
• Reglan (metoclopramide)
• Risperdal (risperidone)
• Serentil (mesoridazine)
• Seroquel (quetiapine)
• Stelazine (trifluoperazine)
• Thorazine (chlorpromazine)
• Triavil and Trilafon (perphenazine, amitriptyline)
• Zyprexa (olanzapine)

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