I have spina bifida and it is the "open" kind. I am not sure which one of the two under open spina bifida it is. I was born with a huge sac and couldnt crawl or hold my head up untill after my surgery when I was 2. I have had a couple surgerys my last being in 2006 for a teathered spinal cord. I am In sooo much pain I cant even stand the whole time to do my dishes. I have kids and a hubby. Ok so my dr (general) said that I cant work, I cant have pain meds and no disability. He says Im to young for the meds and disability. I have been on pain meds since i was 12. I cant deal with the pain I have things to do. Could you please tell me why he would take me off the meds and leave me in pain unable to work with no income? Its horrible I wash a load of dishes (cups, forks spoons) and I have to stop and go lay down for hours. Any advice would help me out a lot!!