Almost a year after i quit taking b-6 the tingling, burning hands and feet and insmonia, fatigue, twitching, balance isues etc. finally started to clear. I was eager to get back to working out. I did 4 moderate work outs over 2 weeks and all the symptoms came back strong. It seems to me that it cycles regularly, good days bad days good weeks bad weeks etc. You have to look at this long term as long as youre progressing you are doing ok.
Sorry to hear your having a tuff time to, this is definitely a yo yo recovery, but I'm feeling a bit better this week. I have found that when I'm doing Manual work I feel better, but it is tuff to get started. Through all of the testing I've been through I tested positive for 1 copy of the mthfr gene. I don't process follicle acid/ b-9 very well. I assume I don't process b-6 well either. I think when we figure this all out we will find several components that lead to this situation. Hope your feeling better soon.
Hi Mulchman - sorry to hear of your setback. I am six months out and going through a relapse myself. I got gastro and this has really brought on muscle aches, extra twitching, nerve pains, and feelings of weakness that I thought were going away.
The good news is that this yo-yo recovery has been reported before by others on this thread.
I have a hobby farm, and I like manual work, but lately I just want to lie on the sofa.
Keep us posted!
Any others got any encouraging news?
Thanks for telling me about the LEAP diet. I'm looking into it now. I do have a ton of environmental and food allergies, so I'm interested in hearing more about this.
Did you need to have a Dr prescribe these blood tests?
I did try a gluten free diet. My Dr also tested me for Celiac's disease and the results were negative (I do not have it). I am able to eat gluten with no more issues than eating anything else with the same amount of vitamin B in it.
I've tried a ton of digestive enzymes. The ones that work best for me are by a brand called Nature's Plus. They just say "Digestive Enzyme." I order them from VitaCost.com and they ship them to me, but you can also find them at Vitamin Cottage. Here's a link:
I've taken some of the ingredients in them by themselves (pancreatin, HCl, Papain) and they didn't make a difference. By process of elimination, I think it's the Malt Diastase that has been helping me but I can't seem to buy that on its own.
I had all those electric shock feelings as I was healing and it got much worse rather than better for a few months after quitting the vitamins. And the stabbing, burning pain. Now, it has been almost seven months and the pain is almost gone. I am not myself again yet as I too used to be physically fit and now have lost a lot of muscle strength. I still have twitchy muscles too. But, I know I am healing and your boyfriend will too. For me, I realized I have B12 and Vitamin D deficiency so needed to take those vitamins and avoid B6. I live in the NW with no sunlight and have been breastfeeding a baby so all my nutrients went to him.
I have heard it takes about three years for full recovery. The thing I don't really understand is why this happens. The first time it happened to me (two years ago) I was taking a fairly high dose of B complex. The second time (seven months ago) I was only taking a prenatal vitamin and having a packet of E-C every day.
For some reason, there are some people who just can't tolerate B6 and it becomes like a poison in the system. I have heard that we might not produce the enzyme needed to process it.
I think natural b6 rich food is not a problem. My diet may be also b6 rich and I think it's not an issue. I eat gluten free grains. I prefer organic and try to avoid GMO food like corn.
In the beginning of this episode I think b6 dense food may have aggravated the symptoms but I have not noticed that any more.
I talked to my fiancé about my mental state which I had some months ago. I still cannot be sure what caused the overwhelming depression, insomnia, physical symptoms and the de-reality feelings.
I tapered off my sleeping pills, increased the daily amount of methyl folate, I also changed the type of b12 vitamin I inject. Meanwhile I also stopped b6 supplements. My mental state and physics started to recover. My fiancé also agreed I have recovered a lot.
I am pretty sure synthetic b6 may be a culprit because there are so many other persons with similar symptoms.